Greetings and a Reminder:
I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out http://www.infantilescoliosis.org/
Sorry this took me so long to write. It’s been a very busy
couple of days! When I left you all Monday night I finally went to sleep around
midnight only to wake up for the day at 2:30, because I was so concerned about
getting to the hospital in the snow. Guess what? We hardly got any snow! That
was a plus. We were out the door by 4:45 and got to the hospital on time.
The little munchkin
is such a pro now. She shows them her medical bracelet when they ask, she lets
them take her blood pressure. She even talks to the nurses now! (I mean it’s
barely audible, but a huge step).
As always Dr. G came
by beforehand to chat with us and look at Olivia. I told him how impressed I
was by her back and how I can run my finger right down her spine. He looked at
her and told us that he will X-Ray her at 10 months instead of the year. That
means her cast might come off in May instead of July!!! This was VERY exciting
news!
Anesthesiology came to talk to us as well and they gave
Olivia a scented face mask to play with to prep her for anesthesia. She got a
big kick out of this. When it was time to go she walked with her “team” and me
to the OR cool as a cucumber. She loves the attention she gets because of her
red hair. Multiple nurses remembered her this time from last time. One
remembered her because of her allergy to peaches, and others remembered her
because of the hair. Ha!
It’s funny. Every time we do this it’s different. This time
we laid her down on the table and I held the mask over her face and sang to her
till she fell asleep. She cried a little at first, but then was ok. I sang
ABCs, Ba Ba Blacksheep, and Twinkle Twinkle (yeah I know…), and then she was
out. It took her longer than usual to fall asleep.
We waited our usual hour in the waiting room, I enjoyed my usual
breakfast sandwich from Au Bon Pain, and crocheted a flower for her to wear
after recovery. While we were in the waiting room Brian got a text from his
sister letting us know she was having her baby and that we were needed to watch
my niece for a little while.
Olivia did great and we were off to recovery to wait for her
to wake up. She had the same recovery nurse as last time, which I was happy for
because I liked her. Last time Olivia was already awake when we got there. This
time she was out for over an hour!
She woke up calmly as always and enjoyed a can of apple
juice and a popsicle. I looked over the
top and front of her cast and it looked really good. The length also looked
good including the bottom. It’s tricky because she is not encouraged to do a
lot of moving following anesthesia so I never get a good look at how the cast
fits on her until after. We also thought she might puke at one point (she didn't), so we were given a barf bag just in case. Olivia enjoyed her new "hat."
Olivia was discharged and we were off to Ashland to babysit.
Olivia had a great afternoon with her cousin. She played and ate and was fine.
By 5:30 there was still no baby and we were relieved of our sitting duties and
went home. I took a shower and was heading out for rehearsal when I noticed the
bottom of Olivia’s cast. It was looking awfully tight and she was getting red
marks on her hips from the skin being pinched between the cast and her pants.
This made me nervous. We iced it and I warned my mother to keep an eye. Oh! And my sister in law gave birth to a bouncing baby boy! My first nephew!
Olivia slept through the night, which was a first in a
month! She woke up VERY irritable and cranky the next day. She sounded congested
and just seemed miserable. Her hips
looked much better, though the cast still seemed tighter than usual in that area. I dropped
her off at my mother's and checked in through the day. She didn't eat much and just wanted to sleep all day. My sister said that she was also complaining about her belly. I wasn't sure if she was sick, or if it was the cast, or what. When I brought her home she seemed fine. She was pleasant, ate well, and slept through the night again. She was also fine all day today. I think she was still working Tuesday out of her system and readjusting to wearing the cast again. She's such a trooper.
I called today to schedule Olivia's next cast. Dr. G is letting us take it off on a Friday and having the new one put on on a Tuesday again. I had asked because it falls around her birthday. So exciting! She gets to have her birthday party cast free! What an awesome birthday present! I will leave you with pictures of the cast.
If you are reading this and haven't liked our facebook page yet please consider "liking" it. It helps me to see how many people I'm reaching out to. I have been so pleased with the number of likes we have received. Again, in addition to this blog being a history for Olivia it is also intended to inform and to help others who are going through the same thing. Spread the word! Thanks! <3
We are so on the same tape wavelength because I had penguins lined up for our next cast as well. :) I am happy you may be out of your casts before you expected! :)
ReplyDeleteI love these posts! Thanks for sharing your adorable little girl with us!
ReplyDeleteAww glade she is doing well with casting. My son is on his 2nd cast and adjusting slower to this cast then the first. Cast removal was a bit heart breaking to me. Seeing his lil body just going back to what it seemed like last time. Our doctor xrays before casting and right after he only lost 8 degrees of the 60 where he started.
ReplyDeleteMonica don't lose heart! Losing 8 degrees after his first cast is awesome! Just think, if he consistently loses that much each time he'll be down to 12 degrees by the end of the first year. He's doing great!
DeleteIn your picture of Olivia after the cast is placed, she has a pillow under her head. Is that some sort of special pillow? I imagine sleep is uncomfortable with the cast. Does it seem to bother her? My daughter (7mo) was just diagnosed and we're seeing a doctor who does casting on Friday, hoping its an option for us. I'm just trying to learn as much as possible before then. Thanks for sharing your story :-)
DeleteI'm actually not sure why she had that pillow. Haha. It's actually a thin egg shape piece of foam with a hole in the middle of it. She does not sleep with a pillow at home due to suffocation concerns. She will lean against a pillow when she's on the couch, but that is all. She sleeps fine for the most part. Remember, to them, this is the norm. They are very resilient and if the cast is applied well, they are totally fine with it. Please don't hesitate to contact me with any questions you may have. Good luck on Friday!
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