tag:blogger.com,1999:blog-5189554954057435822024-03-19T08:00:37.250-04:00The Infantile Scoliosis ChroniclesChronicling the experiences we are going through as a family with a child diagnosed with infantile scoliosis.Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.comBlogger47125tag:blogger.com,1999:blog-518955495405743582.post-70456291457839321862021-09-22T20:48:00.000-04:002021-09-22T20:48:59.414-04:00Brace Day<p> <i style="background-color: white; caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px;"><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></p><div style="background-color: white; caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;"><i><span class="Apple-style-span" style="font-style: normal;"><br /></span></i></div><div style="background-color: white; caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;"><i>I began writing this blog as we went through ET Mehta Casting with our daughter Olivia. The blog was initially intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. We are in a new phase of our journey, as we are now going through adolescent scoliosis, but the message is still the same. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration-line: none;" target="_blank">http://www.infantilescoliosis.org/ </a><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgueVmtcl41g9GLu7CObs_DkPqttf-YjB3u9qSW6agrSII6Cp5KQkzlSYgHsSeXEgL7VvmyO9cojuDRdycHFPKloFiGf4_evk2C8iq7BSQkcgDhaXMVCxHjBqsgtHk_TzwUfNUvu_tM-Uc/" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="2048" data-original-width="1536" height="393" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgueVmtcl41g9GLu7CObs_DkPqttf-YjB3u9qSW6agrSII6Cp5KQkzlSYgHsSeXEgL7VvmyO9cojuDRdycHFPKloFiGf4_evk2C8iq7BSQkcgDhaXMVCxHjBqsgtHk_TzwUfNUvu_tM-Uc/w295-h393/IMG_4196.JPG" width="295" /></a></div></i></div><div style="background-color: white; caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px; text-align: center;">Night Before Brace with her special unicorn</div><div style="background-color: white; caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;"><br /></div><div style="background-color: white; caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXTPwOP_ZT_5tkgXdtB6KJa5yzNJSGN8JSi1F0ixceC6eRGNhtEGXh0SXgEoPJpHYvGiTYq3erHZe54VdeSnaHG7t7b6xNMmYhCEyeQgMdDWuvxm9-l_J3eFIjN7SKf17SZRywjRvkuzg/" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="2048" data-original-width="1211" height="495" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXTPwOP_ZT_5tkgXdtB6KJa5yzNJSGN8JSi1F0ixceC6eRGNhtEGXh0SXgEoPJpHYvGiTYq3erHZe54VdeSnaHG7t7b6xNMmYhCEyeQgMdDWuvxm9-l_J3eFIjN7SKf17SZRywjRvkuzg/w293-h495/IMG_4197.JPG" width="293" /></a></div> Brace Day</div><div style="background-color: white; caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;"><br /></div><div style="background-color: white; line-height: 20px; margin: 0px;"><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;">Friday was brace day! It was a long day. We got to Waltham at 8:40 because traffic was crazy. We were seen right away.<span class="Apple-converted-space"> </span></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;">Our brace tech brings in the brace and explains that it’s her job to trim and size it to Olivia over the next two hours. She shows us the sensor that gets installed into the brace, which will use body temperature to monitor her time in the brace. This information goes to both myself and Children’s.<span class="Apple-converted-space"> </span></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;"></p><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgKZKgc-zzHRxkp098DOlYkIXDX79gtoIjCav5KH13opXBHcYcPihxKUCsz6yg0kV5k7rLDp-OLJgkijCZxpnnxPOE3z3tXavRDnVLsPFy-azv3lyJbwq8gGzzWbcjuHMah0w8QvieRa8/" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="2048" data-original-width="1536" height="451" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgKZKgc-zzHRxkp098DOlYkIXDX79gtoIjCav5KH13opXBHcYcPihxKUCsz6yg0kV5k7rLDp-OLJgkijCZxpnnxPOE3z3tXavRDnVLsPFy-azv3lyJbwq8gGzzWbcjuHMah0w8QvieRa8/w338-h451/IMG_4200.JPG" width="338" /></a></div><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;">The sensor</div><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><br /></div><span style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;">Olivia initially puts on the brace and the brace tech begins to mark the areas that need trimming, heat bending etc. Initially, Olivia felt suffocated in the brace. The brace tech was trying to gauge how confined she feels, which, for Olivia, was impossible to explain, because she has nothing to base it off of.</span><span class="Apple-converted-space" style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"> </span><p style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkvFa1FbmnoTDuQYxHTrxeguGwsDfPwuULUVgEtErnp9rD9w3FuoEjuyZNK5-pkTnaqG2z_OFIj4DR4e2jW1LST5WIzK115O3Vfxsodog2zhV0Z_J8kJPrBrAo9I5NDlGc826TLw9KfgA/" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="2048" data-original-width="1536" height="574" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkvFa1FbmnoTDuQYxHTrxeguGwsDfPwuULUVgEtErnp9rD9w3FuoEjuyZNK5-pkTnaqG2z_OFIj4DR4e2jW1LST5WIzK115O3Vfxsodog2zhV0Z_J8kJPrBrAo9I5NDlGc826TLw9KfgA/w431-h574/IMG_4203.JPG" width="431" /></a></div><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;">First try on</div><p style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;">Initially, there was concern that she maybe needed to be remeasured, which would start the process all over again. Happily, once she started to trim, bend, and smooth, Olivia felt much better. As she starts to adjust to the brace, if there are things that need to be adjusted, we can bring the brace back and fix.<span class="Apple-converted-space"> </span></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;"></p><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQJpZ4DSOT-gOBAu_GxSOJUi4Rsq76ANmX7X8qKc2L84-cOSPesSpeqljKQtGFzoE4cQaaM2PkJaV2-ScLxSQyzotEnSPqCIv-fQK_wYUpaK3bOy5x6yZRGkn5jOt3SeBtwj11xJCr76I/" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="2048" data-original-width="1536" height="485" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQJpZ4DSOT-gOBAu_GxSOJUi4Rsq76ANmX7X8qKc2L84-cOSPesSpeqljKQtGFzoE4cQaaM2PkJaV2-ScLxSQyzotEnSPqCIv-fQK_wYUpaK3bOy5x6yZRGkn5jOt3SeBtwj11xJCr76I/w364-h485/IMG_4204.JPG" width="364" /></a></div><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;">Measuring and Trimming</div><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><br /></div><span style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;">While we waited, I went through the process of setting up the sensor. In the app, I had to give it a name. Olivia was amused that I named it Bee Bo, After Sandra Boynton’s book The Belly Button Book.</span><span class="Apple-converted-space" style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"> </span><p style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;">The two hours were spent by doing fit and trim and fit in trim. O and I watched some Office Ladies cartoons on YouTube to pass the time. In the end, the brace seemed to fit O well. The brace tech marked the velcro fasteners in two spots, the breaking in spots and the final tightness. Olivia practiced putting it on, and I practiced putting it on. We will go back at the end of October to follow up, and see if any other adjustments need to be made. As she breaks it in, we need to watch for areas of irritation. If we see these, we are to go back sooner than later for adjustments.<span class="Apple-converted-space"> </span></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;">Next we headed over to PT. At PT, the therapist looked at her head to toe. First she assessed O’s posture in the brace, noticing that she wasn’t straightening her knees. Olivia expressed that her thighs were tiring quickly, so the therapist said she would look her over out of brace to check her posture, alignment, and flexibility. After her evaluation, she put together a few exercises Olivia will need to do 4 times a week to build her core muscles and extend her hip flexors to help her not fatigue her legs.<span class="Apple-converted-space"> </span></p><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><br /></div><p style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;"><br /></p><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpQrteaEmaUxvnAxs0wrbBvbie8sVnrnFzFhb7DsPYlah4HX9JYsICSj6YmoAc1HnxrhcNsaOY-2X_WvqixIpRBWPCLRUMI_JMV3LsLDV6g4_z3Je1iv5IeHPT7qVvIihEK09U2_FWQ98/" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="2048" data-original-width="1536" height="489" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpQrteaEmaUxvnAxs0wrbBvbie8sVnrnFzFhb7DsPYlah4HX9JYsICSj6YmoAc1HnxrhcNsaOY-2X_WvqixIpRBWPCLRUMI_JMV3LsLDV6g4_z3Je1iv5IeHPT7qVvIihEK09U2_FWQ98/w367-h489/IMG_4216.JPG" width="367" /></a></div><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;">PT</div><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4FGswJnEcuhACPSAmHrvP6G8RvRhImR6GkiI4FLbshyphenhyphenXLPI4fg-quOsvyQn8TXDZD0fUBcCkIdR885z8J9X2RnmkwO-tY5-6xVuS5nSO9Q_O6Pvo5SsoRtMlwh-gAA8dhUE0i130ST4E/" style="margin-left: 1em; margin-right: 1em;"></a><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4FGswJnEcuhACPSAmHrvP6G8RvRhImR6GkiI4FLbshyphenhyphenXLPI4fg-quOsvyQn8TXDZD0fUBcCkIdR885z8J9X2RnmkwO-tY5-6xVuS5nSO9Q_O6Pvo5SsoRtMlwh-gAA8dhUE0i130ST4E/" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgL41Q0rTHSC8p6tfEH9euSrhpwttIT_MluOiMWlRxo5c5WKpwOpqiVzds4z48MVEWLNVS9bF5pFwBRzJLoKwavIdvBrc0I6DC4Dvv9Rs2GEGkQp54N5SEL8THejOjLZZH06EaC2opWQs/" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="2048" data-original-width="1536" height="478" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgL41Q0rTHSC8p6tfEH9euSrhpwttIT_MluOiMWlRxo5c5WKpwOpqiVzds4z48MVEWLNVS9bF5pFwBRzJLoKwavIdvBrc0I6DC4Dvv9Rs2GEGkQp54N5SEL8THejOjLZZH06EaC2opWQs/w359-h478/IMG_4208.JPG" width="359" /></a></div><div class="separator" style="clear: both; text-align: center;">Initial chat</div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><br /></div><img alt="" data-original-height="2048" data-original-width="1536" height="466" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4FGswJnEcuhACPSAmHrvP6G8RvRhImR6GkiI4FLbshyphenhyphenXLPI4fg-quOsvyQn8TXDZD0fUBcCkIdR885z8J9X2RnmkwO-tY5-6xVuS5nSO9Q_O6Pvo5SsoRtMlwh-gAA8dhUE0i130ST4E/w350-h466/IMG_4206.JPG" width="350" /></div></div><p style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"> Trying to pick things up in brace</p><br /><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikAd0npwIxCgTx8TwRCqqsscATxiBexwn29cPzDWFxXIV56pyrQa1HoyxI3TERfQ_-KKyyHrW1Dz4MxvMjApfvp-CjfFME5R_i0oR9SWUHPerKAlDBIdALiVODy6aBXHzeSGXe4YUxMUo/" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="2048" data-original-width="1536" height="460" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikAd0npwIxCgTx8TwRCqqsscATxiBexwn29cPzDWFxXIV56pyrQa1HoyxI3TERfQ_-KKyyHrW1Dz4MxvMjApfvp-CjfFME5R_i0oR9SWUHPerKAlDBIdALiVODy6aBXHzeSGXe4YUxMUo/w345-h460/IMG_4211.JPG" width="345" /></a></div><p style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;"></p><div style="background-color: white; line-height: 20px; margin: 0px;"><p class="p1" style="font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;"></p><div style="text-align: center;"><span style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue";">Evaluation</span></div><div style="text-align: center;"><span style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue";"><br /></span></div><div style="text-align: left;"><span style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue";"><br /></span></div><span style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue";"><div style="text-align: left;">After PT we went over to Orthopedic to meet with nursing. Here we discussed how to break Olivia into brace wearing, proper care of the brace, and what to look for with her skin. The nurse came in, and said, “I’m going to tell you something weird. Your name seemed REALLY familiar to me. As I was reviewing your file, I realized why. I was your cast tech when you were a toddler. I worked with Dr. G, and put on all of your casts.” It was such a "full circle" moment.</div></span><p></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;"><br /></p></div><span style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;">Olivia will work her way up to wearing the brace 18 hours a day. The first 5 days she will wear it for 2 hours at a time for a total of 6 to 8 hours. Then for the next 5 days it’ll be 4 hours at a time for a total of 12 hours a day. Then for the last 5 days she needs to try to increase an hour at a time until she’s in it for the full 18 hours. She will start doing overnight sleeping October 1st.</span><span class="Apple-converted-space" style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"> </span><p style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;">She has 4 undershirts. The undershirts help wick sweat, and minimize skin irritation. If there’s irritation we should note it, and try Gold Bond powder. Again, the brace can be adjusted if needed. Following the appointment, we also went out and bought her some comfortable sports bras to wear with the undershirts. We’re also working on pants that fit comfortably over the brace.<span class="Apple-converted-space"> </span></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;">The brace needs to be cleaned every day. Basically, I have filled a spray bottle with rubbing alcohol and I spray it down. This kills bacteria, which will reduce odor.<span class="Apple-converted-space"> </span></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;">I have assembled a “weaning in” schedule for the next 15 days. Olivia and the school nurse will be great friends over this first week of school. It will level off after that. She will have to use the nurse’s bathroom, and should be allowed to move as much as she needs. We will meet with the nurse to go over everything.<span class="Apple-converted-space"> </span></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;">Today is day 6. She has worked up to 10 hours in brace so far. Her skin looks good, and she’s getting the knack of getting the brace on. She is self conscious about how she looks in it, but it will get better over time.<span class="Apple-converted-space"> </span></p><p class="p2" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; min-height: 14px;"><br /></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;">Thank you all for the warm thoughts and well wishes. She’s a trooper.</p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;"><span class="Apple-converted-space"><br /></span></p><p class="p1" style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px;"><span class="Apple-converted-space"> </span></p><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7UEAdg_hykCljugMwE7Kd7FqElAEeoDjdWPpSmUA9c1J72Vm9Xf8XVkcz4hK6Vu7yvwUEk5gy4FfVxrvU_uesyP1mYqShVGW4kf4FiBXQUyJDjqFYi_GiGTqFptHa1hVbB2RG9EIr-WQ/" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="2048" data-original-width="1536" height="436" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7UEAdg_hykCljugMwE7Kd7FqElAEeoDjdWPpSmUA9c1J72Vm9Xf8XVkcz4hK6Vu7yvwUEk5gy4FfVxrvU_uesyP1mYqShVGW4kf4FiBXQUyJDjqFYi_GiGTqFptHa1hVbB2RG9EIr-WQ/w327-h436/IMG_4215.JPG" width="327" /></a></div><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;">Really looking at herself in the brace for the first time</div><div class="separator" style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: center;"><br /></div><h2 style="caret-color: rgb(51, 51, 51); clear: both; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; text-align: left;"><u>Olivia's Corner</u></h2><div style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"></div><p style="caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"></p><div style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; text-align: left;"> The first time you put your back brace on it’s going to feel different. For you it could be tight or it could feel uncomfortable in some spots, but don’t worry they will adjust the brace. Now, for the first few weeks it will feel weird and unbearable but you will eventually get used to it. Now don’t be nervous, when you first have it on you only have to wear it for a few hours for about a week. Your families will help you adjust with school and sleeping and all of that. </div><div style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; text-align: left;"><br /></div><div style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; text-align: left;"> So, something that’s going to be tough is eating cause the back brace presses against your stomach so you might not feel good. Now for the girls that are going through puberty and you feel bloated the brace will feel tight and uncomfortable. The doctors will give you suggestions on how to handle it. </div><div style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; text-align: left;"><br /></div><div style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; text-align: left;"> Having a back brace can be tough and you can feel alone at some times, but remember we’re in this together.<span class="Apple-converted-space"> </span></div><div style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; text-align: left;"><span class="Apple-converted-space"><br /></span></div><div style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; text-align: left;"><span class="Apple-converted-space"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxpW7UFywql3sML60w4cctZXHAu3U02bSul7YoUwQmC9eJenUu_jWEEJbI6svb1nY3Tun07wRccTZc2tGX22grBJUJxYhuUdxlyygdyz4Cg_f2v0osCw3zMBRfAQH4yevk1DVEIH65S-E/" style="font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; margin-left: 1em; margin-right: 1em; text-align: center;"><img alt="" data-original-height="2048" data-original-width="1536" height="532" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxpW7UFywql3sML60w4cctZXHAu3U02bSul7YoUwQmC9eJenUu_jWEEJbI6svb1nY3Tun07wRccTZc2tGX22grBJUJxYhuUdxlyygdyz4Cg_f2v0osCw3zMBRfAQH4yevk1DVEIH65S-E/w399-h532/IMG_4213.JPG" width="399" /></a></span></div><div style="caret-color: rgb(51, 51, 51); color: #454545; font-family: "Helvetica Neue"; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; margin: 0px; text-align: center;">Fashionista</div></div>Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com2tag:blogger.com,1999:blog-518955495405743582.post-39428387130387088482021-08-22T14:42:00.003-04:002021-08-22T14:42:43.164-04:00We’re Back!<div style="background-color: white; caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px; text-align: center;"><i><span class="Apple-style-span" style="font-style: normal;"><div class="separator" style="clear: both; text-align: center;"><br /></div><br /><div style="text-align: left;"><i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div></span></i></div><div style="background-color: white; caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;"><i><span class="Apple-style-span" style="font-style: normal;"><br /></span></i></div><div style="background-color: white; caret-color: rgb(51, 51, 51); color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;"><i>I began writing this blog as we went through ET Mehta Casting with our daughter Olivia. The blog was initially intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. We are in a new phase of our journey, as we are now going through adolescent scoliosis, but the message is still the same. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div><p><br /></p><p> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Hello! Long time no see! Olivia has been cast/brace free these past 8 years. During that time we continued to monitor her back with annual x-rays at Boston Children’s.</span></p><p><span style="-webkit-text-size-adjust: auto; font-size: 17px;"><br /></span></p><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjU9qXHMT285dMYYyE5I5vc0IZ1fDouj51rS6DQCIxr6tNVoVyoPqD7n5hGIEm8IHj7oLf7RR2J1WdWoVKVFZZG_CZbxgB7oD_VRzdTsKZGQjU6a8gpBSiPMvuZH017YtxxaJQyHDyJfEc/s1486/1B8D3B4B-7137-46D5-9DB9-516465020463.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1486" data-original-width="1061" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjU9qXHMT285dMYYyE5I5vc0IZ1fDouj51rS6DQCIxr6tNVoVyoPqD7n5hGIEm8IHj7oLf7RR2J1WdWoVKVFZZG_CZbxgB7oD_VRzdTsKZGQjU6a8gpBSiPMvuZH017YtxxaJQyHDyJfEc/s320/1B8D3B4B-7137-46D5-9DB9-516465020463.jpeg" width="228" /></a></div><br /><div style="text-align: center;"><span style="-webkit-text-size-adjust: auto; font-size: 17px;">Olivia 2018</span></div><div style="text-align: center;"><span style="-webkit-text-size-adjust: auto; font-size: 17px;"><br /></span></div><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCrDMUnUQmVmYEd8jGKPvQgOIR5obNHcv_vEvFOY8Lz03XwuFqUSyK7QgKzX9QGpPK5XnhXQb5-RBThEXh7-AZ2Il3M1DbCcibQfx5yjoRVJj783iSn_Uj1uteffWb0Ntd1eVc5-NqTys/s2048/558CEE61-35D5-4EE8-91C2-3BEA89A109E1.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1365" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCrDMUnUQmVmYEd8jGKPvQgOIR5obNHcv_vEvFOY8Lz03XwuFqUSyK7QgKzX9QGpPK5XnhXQb5-RBThEXh7-AZ2Il3M1DbCcibQfx5yjoRVJj783iSn_Uj1uteffWb0Ntd1eVc5-NqTys/s320/558CEE61-35D5-4EE8-91C2-3BEA89A109E1.jpeg" width="213" /></a></div><br /><span style="-webkit-text-size-adjust: auto; font-size: 17px;">Olivia 2019</span></div><div style="text-align: center;"><span style="-webkit-text-size-adjust: auto; font-size: 17px;"><br /></span></div><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgsWT89xD9ByktoPiSskE_4gEZebOGLD8UfR6cWQBQ_OD4KE1eEKXbaqkZIH-P_KSFSIvygQSPRejkBpL_bLW-iO7ue_KYn8Zg_f-OdIGd_Bq1zDazDxQ8hupw4LE8glEiVwXB2Qh0014E/s2048/FA256C59-FFF4-4797-9B8E-64D3F8824E71.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1463" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgsWT89xD9ByktoPiSskE_4gEZebOGLD8UfR6cWQBQ_OD4KE1eEKXbaqkZIH-P_KSFSIvygQSPRejkBpL_bLW-iO7ue_KYn8Zg_f-OdIGd_Bq1zDazDxQ8hupw4LE8glEiVwXB2Qh0014E/s320/FA256C59-FFF4-4797-9B8E-64D3F8824E71.jpeg" width="229" /></a></div><br /><span style="-webkit-text-size-adjust: auto; font-size: 17px;">Olivia 2020</span></div><div style="text-align: center;"><span style="-webkit-text-size-adjust: auto; font-size: 17px;"><br /></span></div><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1MMAx_qOMWY4qOIfqDL7BbK8rKCkcTaHUYBxLKDIHg1KJeTsCNvVCOojxMNwO1idD8eIDuILxfSdDuMWYW7GKUFWMPP5-v4BmlyVMHwJd33EYJ5Jbe1qRFux19VhokRaHuINT0SiN9kE/s2048/92FD815F-2948-4899-A191-99E028C44C34.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1MMAx_qOMWY4qOIfqDL7BbK8rKCkcTaHUYBxLKDIHg1KJeTsCNvVCOojxMNwO1idD8eIDuILxfSdDuMWYW7GKUFWMPP5-v4BmlyVMHwJd33EYJ5Jbe1qRFux19VhokRaHuINT0SiN9kE/s320/92FD815F-2948-4899-A191-99E028C44C34.jpeg" width="240" /></a></div><br /><span style="-webkit-text-size-adjust: auto; font-size: 17px;">Olivia today</span></div><p></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1"> In 2019, Dr. G moved on to a new position at another hospital and we are now cared for by Dr. B. It was also around this time that I expressed concerns that Olivia would soon be reaching her next rapid growth phase with puberty looming. We agreed to start monitoring every 6 months. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">So, here we are. Olivia’s curve has progressed. When we completed casting/bracing in 2013 she was under 5 degrees. Over the years she has stayed relatively low, around the 10 degree range. Her recent x-ray revealed that her curve is now 23 degrees. It also progressed quite a bit from January to now. We have decided that it is time to go back to bracing until Olivia has completed growing, which will roughly be 18-24 months. </span></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1"><br /></span></p><p class="p1" style="font-stretch: normal; line-height: normal; margin: 0px;"></p><div class="separator" style="-webkit-text-size-adjust: auto; clear: both; font-size: 17px; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsM8tLxJ_2z4CY-Adnu7yyCBwQVKNaFDtGWQUYPWm8j1pClXby2yKBcgWFyGApwIMMaPfsOuN5g5rjPWwtiR6zIF3gDN3CPQy5cL7i_-w7xe2bf_NZDrLX0woLRTfG_j6qyT4CCHg2iqo/s320/D30CCA4C-3409-4102-B898-5D01C644F71E.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="320" data-original-width="231" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsM8tLxJ_2z4CY-Adnu7yyCBwQVKNaFDtGWQUYPWm8j1pClXby2yKBcgWFyGApwIMMaPfsOuN5g5rjPWwtiR6zIF3gDN3CPQy5cL7i_-w7xe2bf_NZDrLX0woLRTfG_j6qyT4CCHg2iqo/s0/D30CCA4C-3409-4102-B898-5D01C644F71E.png" width="231" /></a></div><br /><div style="text-align: center;"><span style="-webkit-text-size-adjust: auto; font-size: 17px;">When we started. 40 degrees. </span></div><div style="text-align: center;"><span style="-webkit-text-size-adjust: auto; font-size: 17px;"><br /></span></div><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijZ5kfHu3_OG_eIZvpbL7NOjsUWOdyvvlcVcjRjp2907HTVje2IJHu7TAGBGhJ224enJ1U-EMJG-4_LznV2cZaYryq3mMCMMLmp04UthgCw15LAejpVtTJX3xQOg6C5Y6cbLeggb3ze-w/s335/CDF6F33F-C19A-45E0-ADED-0457F090656F.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="335" data-original-width="190" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijZ5kfHu3_OG_eIZvpbL7NOjsUWOdyvvlcVcjRjp2907HTVje2IJHu7TAGBGhJ224enJ1U-EMJG-4_LznV2cZaYryq3mMCMMLmp04UthgCw15LAejpVtTJX3xQOg6C5Y6cbLeggb3ze-w/s320/CDF6F33F-C19A-45E0-ADED-0457F090656F.png" width="181" /></a></div><br /><span style="-webkit-text-size-adjust: auto; font-size: 17px;">Where we ended (2013)</span></div><div style="text-align: center;"><span style="-webkit-text-size-adjust: auto; font-size: 17px;"><br /></span></div><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBbn4SEt-nGAdEQXK-DDdwyWSnvaViuZG_HYMR4mKqLT9DQmF4CFnbRO2zQgl5UwbNq_CvK7tP_YOqRajyxgxNEga6zi9gcT4CKKFjz0zmZ7_zPjdImF-9vG7f7JVlsP9MzCErZkbWJ6A/s2048/31DDD7B9-2E14-406C-B43A-51B5F74DBD6D.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBbn4SEt-nGAdEQXK-DDdwyWSnvaViuZG_HYMR4mKqLT9DQmF4CFnbRO2zQgl5UwbNq_CvK7tP_YOqRajyxgxNEga6zi9gcT4CKKFjz0zmZ7_zPjdImF-9vG7f7JVlsP9MzCErZkbWJ6A/s320/31DDD7B9-2E14-406C-B43A-51B5F74DBD6D.jpeg" width="240" /></a></div><br /><span style="-webkit-text-size-adjust: auto; font-size: 17px;">Today. 23 degrees. </span></div><div style="text-align: center;"><span style="-webkit-text-size-adjust: auto; font-size: 17px;"><br /></span></div><div style="text-align: center;"><span style="-webkit-text-size-adjust: auto; font-size: 17px;"><br /></span></div><p></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Olivia is, as expected, disappointed, but she’s taking the news like a champ. We have decided to continue the blog in this new phase of her journey, to continue what we started, which is to raise awareness, and offer information and support to families going through scoli life. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">This time around, however, Olivia will be contributing her perspective of it all, and will be blogging with me!</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Here’s where we are at the present moment. On Friday, we went to Boston Orthotics and Prosthetics, formally known at NOPCO. It’s here where Olivia gets her initial brace fitting. You can click <a href="http://theinfantilescoliosischronicles.blogspot.com/2013/05/theres-light-at-end-of-tunnel.html?m=1">here</a> to read our post from 2013. This post gives you a little background on the Boston Brace, and it’s neat to see how technology has changed these past 8 years. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">We went to the Waltham location. Just as before, Olivia was first given her undershirt. She will wear this under the brace to reduce chafing and skin breakdown. The undershirts have a silver threading inside, which acts as an antimicrobial to help reduce the stinkiness. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Olivia needs to wear the brace 20 hours a day. She can take it off for showering, and physical activities. She will have to get used to sleeping in the brace, but doesn’t have to put on hold the things she loves like dance and softball. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Olivia’s previous brace was the hard shell and then padding inside to push her torso in the right places. Back then they used an infrared sensor to scan her torso to shape the brace. Today, they use technology on an iPad to get a more accurate scan, eliminating the need for the padding. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Another addition is you now have the option of having a button installed in the brace. This button detects heat, which indicates the brace is being worn. This way, you can easily track your brace wearing time, which can help the doctor determine it’s effectiveness etc. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Olivia was scanned and measured. She was checked for flexibility, and measured sitting down to see how she sits and where her natural waistline is. Lastly, she got to pick out a pattern for the brace. There were tons to choose from. She went with “tattoo.”</span></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1"><br /></span></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhu_dnWIR5QjuUpkYJyuxgZ0gEc99_TPdmvhGC_hc-3-RfXsqvceN5JXdI4_s1EZbiYjgG4lUfFjhAC-CJ_nY8S3bZyg2Tjp6V3g1uVUQchuf1btP874a1qcBg1VGaIwyXGQu_YdtVyVhc/s2048/685BDA6C-077F-4363-8113-01D12C72AD30.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhu_dnWIR5QjuUpkYJyuxgZ0gEc99_TPdmvhGC_hc-3-RfXsqvceN5JXdI4_s1EZbiYjgG4lUfFjhAC-CJ_nY8S3bZyg2Tjp6V3g1uVUQchuf1btP874a1qcBg1VGaIwyXGQu_YdtVyVhc/s320/685BDA6C-077F-4363-8113-01D12C72AD30.jpeg" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjn0MCxVzSiwBqmg3m-8cmxcThib-svHNML2TroW9LsKvstE7I6X8Fl3nO0rDzLnv1zoS1_sCs0J0kSKBTThHEZMSBUj3Jo4P7YFpV1kH2mD7tyQrWByBwZJvC07-AW3Pzvz-84X9JcWtk/s2048/60EA53F4-860C-45A2-AFD4-8FDD080179ED.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjn0MCxVzSiwBqmg3m-8cmxcThib-svHNML2TroW9LsKvstE7I6X8Fl3nO0rDzLnv1zoS1_sCs0J0kSKBTThHEZMSBUj3Jo4P7YFpV1kH2mD7tyQrWByBwZJvC07-AW3Pzvz-84X9JcWtk/s320/60EA53F4-860C-45A2-AFD4-8FDD080179ED.jpeg" width="240" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeBK2Mh_v2p8DTI4Jgcye0vzYVJBMZLRENAhOtdDi3_n3XQ5G7flUe1OEaLDjaVKN97-ZtrkVa65WvkDporwM9DBe8ecOhyphenhyphenjSSgJuSqMg_JTWC7uDI8iEvDo4S1_09dgPiU6dLsev1TpA/s2048/577BDB71-EB7A-45AF-8372-CBE9359EE36F.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1152" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeBK2Mh_v2p8DTI4Jgcye0vzYVJBMZLRENAhOtdDi3_n3XQ5G7flUe1OEaLDjaVKN97-ZtrkVa65WvkDporwM9DBe8ecOhyphenhyphenjSSgJuSqMg_JTWC7uDI8iEvDo4S1_09dgPiU6dLsev1TpA/s320/577BDB71-EB7A-45AF-8372-CBE9359EE36F.jpeg" width="180" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGO-Hs3o_69FknQ3o5A4NuRTHlQZLbNta2Y9R8XdtpDUEfa0Vt3Srtk364ZQPZyS0hHUwYmlLBwNyuC1ewhHJUkMOszfERcTFmAur3u3lXYpQtMYXqpoUH8Bji4aBOBAFur76aOXsWywo/s2048/C4E5D9E4-B907-491E-B99E-E291C6003DCC.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGO-Hs3o_69FknQ3o5A4NuRTHlQZLbNta2Y9R8XdtpDUEfa0Vt3Srtk364ZQPZyS0hHUwYmlLBwNyuC1ewhHJUkMOszfERcTFmAur3u3lXYpQtMYXqpoUH8Bji4aBOBAFur76aOXsWywo/s320/C4E5D9E4-B907-491E-B99E-E291C6003DCC.jpeg" width="240" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgl3jMfJjgMXNFHkAUo7sSdatdXWM4urvGpmbTPwxMypBNLacwxlh3w11OW0PVoNq7SDPXyJjix0fexf5cfWSd9jSLt8aFKfDB0romOCwuf7-FSfG58rgtvrOzRW3uGWHIOAD1yotZrFA0/s300/4B25DED5-C53F-4B27-9671-A6B38A23DDF5.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="300" data-original-width="300" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgl3jMfJjgMXNFHkAUo7sSdatdXWM4urvGpmbTPwxMypBNLacwxlh3w11OW0PVoNq7SDPXyJjix0fexf5cfWSd9jSLt8aFKfDB0romOCwuf7-FSfG58rgtvrOzRW3uGWHIOAD1yotZrFA0/s0/4B25DED5-C53F-4B27-9671-A6B38A23DDF5.jpeg" width="300" /></a></div><br /><div class="separator" style="clear: both; text-align: center;">Brace Pattern “Tattoo”</div><br /><span class="s1"><br /></span><p></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">It typically takes 2 weeks for the brace to be ready. With it also being Labor Day week, we will have to wait until the week after. Olivia will get her brace on September 17th. That will be a long appointment. It takes about 2 hours for them to properly fit it, and trim it to her, so that she is as comfortable in it as possible. Following that, she will then meet with PT to learn some exercises to do in the brace, and nursing to learn proper hygiene and brace care. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">On October 28th she will get an X-ray in the brace and meet with Dr. B to check in and see how she’s adjusting. Then from there it’s monitor every six months. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">I’d like to end my portion of this post with a shoutout to Lauren of Higgy Bears! Lauren is a scoli warrior who started this business to bring braced stuffies to children going through bracing and surgery. You can check out her story and business <a href="https://higgybears.com/">here</a>! We’ll be surprising Miss Olivia with a unicorn wearing a brace that matches hers to help make the experience a little more “bearable.”</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Now, onto Olivia’s post….</span></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1"><br /></span></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 28px; font-stretch: normal; line-height: normal; margin: 0px 0px 3px;"><span class="s1" style="font-weight: bold;">Getting a back brace</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s2"> </span></p><p class="p3" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s2"> <span class="Apple-converted-space"> </span>When you hear you have to get a back brace lots of emotions run through your head. You probably get really nervous about how you look or how this will effect your personal life and a whole bunch of other stuff. One of my biggest worries is going into middle school. Now I’m going into fifth grade but I have to have the brace for two years so I will go into middle school with it. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s2"></span><br /></p><p class="p3" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s2">Some of you might think about how the kids will react to your back brace. I’ve learned that at this stage of your life there will be other kids going through the same thing so when you get to middle school there will most likely be other kids with back braces too. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s2"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1"></span></p><p class="p3" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s2">Now with your personal and social life, I don’t know how long you have to keep your brace on for every day but I have to keep mine on for 20 hours a day. So I get a break for four hours a day which gives me time for my after school activities. So you do have to sleep in the brace but I’m hoping that will not be problem. It might get some getting used to but I think I’ll be fine. I hope you have a nice rest of your day and I be back soon. </span></p>Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com3tag:blogger.com,1999:blog-518955495405743582.post-26183525805535060732017-12-12T07:27:00.001-05:002017-12-12T07:27:11.784-05:00A Christmas MiracleThis is not a scoli story but an important one nonetheless.<br />
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One year ago today on my late grandmother’s 85th birthday I found out I was pregnant with James. </div>
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I was at my therapist’s and we were talking about the next frozen IVF cycle I was about to do. She had been tracking my cycle and asked if everything was progressing on time and I told her no that I was five days late. I continued by saying I wasn’t thinking much about it because I had been late before and that never meant anything. She said five days is a long time and didn’t I want to get that checked out? I responded with a shrug and a maybe. </div>
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After three years of negative pregnancy tests one tends to not get their hopes up. She however put a bug in my ear and really got me thinking. I had forgotten my wallet at home that day so I scrounged up some quarters and stopped at the nearest Dollar Tree to purchase the finest pregnancy tests 8 quarters could buy. I bought two boxes and headed home...</div>
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A few weeks before Thanksgiving I was driving Olivia and myself home from school. I remember exactly where we were on our route home when she said the following, “Mommy! I know what I’m going to ask Santa for! I’ll ask him to have a baby in your belly for Christmas.”</div>
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As I stood in the bathroom and watched that pink line appear on the test, I proceeded to laugh out loud. My daughter was going to get her wish. </div>
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Truly in awe of what was unfolding, I was compelled to write a letter to Santa. The Santa at the Swansea Mall has always had a great relationship with Olivia. She would visit him on a regular basis and he recognizes her and remembers her name. This is the letter I gave him:</div>
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Dear Santa,</div>
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I'm writing to you to thank you for all you stand for, and what you have done for our family. As you know, your buddy Olivia asked for two things this Christmas; a cupcake maker, and for a baby sister to be in her mommy's belly. What you don't know is that we've been struggling with infertility for the past 3 years. Olivia and I were on our way home one day when she told me she was going to ask for a baby sister for Christmas. She never asks for that nor does she know how hard we have been trying including medical treatments. It truly broke my heart and I explained that she is certainly allowed to ask but that it might not work out.<br />My faith in the Christmas spirit, miracles, and the belief in Santa and the magic and wonderment he instills has forever been cemented. We are pregnant. No doctors. No treatments. A completely organic pregnancy.<br />I remain cautiously optimistic as we suffered two miscarriages this year, but there's just something about this one that I can feel in my heart that this time it's going to work out.<br />So I thank you for providing such a Christmas miracle to my family. You have always been so good to my girl and she just adores you. You have been her Santa since she was a baby.<br />I worry the mall won't be here by next Christmas. I would like very much to keep in contact because you're always so wonderful with Olivia. Here is my email and mailing address. Please consider dropping us a line sometime. I know she'd be thrilled. Thank you. </div>
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I Will Always Believe,</div>
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Laura Gustafson<br />lgustafson1230@gmail.com</div>
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We receive emails from Santa on a regular basis now. Of course, she got a little brother instead of a little sister, but we’re all ok with that. Santa got to meet James last week and was thrilled to be able to hold him and chat with his buddy Olivia. <span class="_5mfr _47e3" style="font-family: inherit; line-height: 0; margin: 0px 1px; vertical-align: middle;"><img alt="" class="img" height="16" role="presentation" src="https://www.facebook.com/images/emoji.php/v9/f7f/1/16/1f60a.png" style="border: 0px; vertical-align: -3px;" width="16" /><span class="_7oe" style="display: inline-block; font-family: inherit; font-size: 0px; width: 0px;">😊</span></span></div>
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Never. Ever. Stop believing in the magic this time of year can bring. I am so blessed to have my two little miracles. Miss Olivia takes full credit for James being here, and that if she hadn’t wished for him it wouldn’t have happened. I believe there’s some truth in that. </div>
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Magic, particularly Christmas magic, is a sacred and special thing. So is fate. It was fate that I found out I was pregnant on my grandmother’s birthday and fate when I found out on my own birthday that I wasn’t going to miscarry this time. Everything about this pregnancy was magical and surreal. Even when I was as big as a house, uncomfortable, and ready, I was still in disbelief that this was happening. </div>
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I thank the heavens everyday for my Christmas miracle.</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com1tag:blogger.com,1999:blog-518955495405743582.post-78784135152694961002015-11-29T22:00:00.002-05:002015-11-29T22:00:53.351-05:00A Special Gift<div style="background-color: white; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;">
<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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A very special moment happened last week. Close to two years ago a dear friend of ours, Paula, asked permission to use a photograph I had taken of Olivia at my sister’s wedding for a painted quilt hanging. Life got in the way as it does and she began working on it six months later. Paula remained very quiet about the project and I had not seen its progress at all. Last Monday she emailed me asking if we would be home because it was finished and she was hoping to drop it off Wednesday.</div>
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The work Paula does is true art. Every detail is meticulously considered and expertly executed from the selection of colors down to the last stitch. I have seen many of the pieces Paula has created and excitedly anticipated the reveal of the piece she was making of Olivia.</div>
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I was beyond blown away by the gorgeous piece she gave us, and the amount of love and care you can plainly see she put into it. The photographs do not do it justice. The most touching part, however, was Paula’s explanation of why she was so compelled to recreate the photograph.</div>
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“When I was a little girl I was a tomboy who LOVED cowboy boots. First, I saw the boots and I thought, 'oh my goodness!’...Then I noticed how straight her spine was...I knew I had to make this.”</div>
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She named the piece “Reach for the Stars” and created a background of stars because she knows Olivia, and her potential to do great things in this life. She also made certain to display Olivia’s spine on the hanging.</div>
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Both Paula and her husband Bruce have become very special to us over the past four years. We think the world of both of them and admire how talented and kind they both are. They have become like family to us, and Olivia loves to visit them.</div>
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We cannot thank Paula enough for this extremely special gift. It is something we will always cherish.</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com0tag:blogger.com,1999:blog-518955495405743582.post-73638939709558830202015-05-24T23:20:00.002-04:002015-05-24T23:20:18.331-04:00Another Year Has Passed<div style="background-color: white; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;">
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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It's been three years since we discovered something didn't look right with Olivia's ribs.</div>
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It's been two years to the day that Olivia's last cast was removed and she was fitted for her brace. </div>
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We will be heading up to Children's for her annual some time in July. We, as a family, remain grateful every day for the care we received from Boston Children's Hospital. I am also grateful for finding The Infantile Scoliosis Outreach Program. Without them I think I would have been a ball of panic when we received Olivia's diagnosis. They were an amazing resource as we learned as a family how to live a casting life. </div>
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We were all pleasantly surprised the other day when we received an email from one of Olivia's favorite people, Ben. Ben was the gentleman who fitted Olivia for her brace. She still talks about him and asks when she can go and visit Ben. Hearing from him, truly made all of our days. This is what I love about the people we have encountered at Children's. They touch so many lives, and they recognize and individualize each and every life that they touch. They truly are special people who make such a wonderful difference in this world.</div>
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I check her back on my own periodically and love running my finger down her straight spine. Her favorite part of our bedtime routine is a nightly back rub, something I will NEVER deny her. </div>
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Miss O has had a wonderful year!<br />
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<span style="text-align: start;">She is close to completing her first year of preschool at the school I work at and has learned so much!</span></div>
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She has a new cousin!</div>
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She decided she wanted to be Mary Poppins for Halloween.</div>
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She made a friend at Christmas.</div>
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And she had an Annie party for her 4th birthday.</div>
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Our girl continues to grow and amaze us every day. </div>
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We thank you for following along on our journey. Here's to many more adventures!</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com2tag:blogger.com,1999:blog-518955495405743582.post-59951431753797683942014-07-23T23:48:00.005-04:002014-07-23T23:55:55.487-04:00And She Lives Happily Ever After<div style="background-color: white; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;">
<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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I write this blog post on the 2 year anniversary of Miss Olivia's first cast. I can remember that day like it was happening right now. I don't need to go back and read my <a href="http://theinfantilescoliosischronicles.blogspot.com/2012/07/the-cast-is-on.html" target="_blank">original post </a>to remember every little detail of that day. </div>
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Two years.</div>
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I can't believe two whole years have gone by! So much change has happened over those two years. Olivia is now an independent little lady about to start pre-school. We're approaching the one year anniversary of the move to our new home. Olivia has welcomed a new cousin and is soon to welcome another cousin into her life. </div>
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To say we have been blessed is an understatement. </div>
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Let's back up a little in order to catch up to now. My last post was in January and I mentioned that we were heading to Children's for an x-ray. I was nervous because she hadn't been wearing her brace for a month due to her being ill and then complaining that it was bothering her because she pretty much had outgrown it. I promised a post that never came. Our appointment that day was cancelled due to weather and had to be rescheduled for the end of the month. Life got the best of me and I never updated.<br />
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We went for the appointment and I am pleased to say the x-ray looked great and Dr. G was impressed by how well she was maintaining, despite being out of the brace for almost two months at that point. The plan was for her to be in a brace for a year. She had only been in a brace for 5 months. Her x-ray looked good so Dr. G gave us the option of either fitting her with a new brace, or riding it out brace free, which we would monitor closely at home and see him again at the end of June. We took the latter. It was such a thrill to be given that option, which we of course took with extreme caution. </div>
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Following our visit with Dr. G we had to head down to NOPCO so Olivia could see her friend Ben. She brought him a bag of M&Ms (her request), which he shared with her. If you go to the NOPCO at Boston Children's Hospital I recommend you see Ben for bracing if you can. He had such a way with Olivia. She still talks about him. We said our goodbyes, which was bittersweet. I knew how much Olivia adored Ben, but I was hoping it would be our last visit to NOPCO.</div>
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Fast forward to the end of June. I was watching Olivia's back closely for the five months following our January visit and was confident we would get a good result on her x-ray. Sure enough her x-ray came back with an under 5 degree curve! We were officially graduating to a scoliosis free life! It was the happy ending we had been eagerly waiting for! Of course I still look at her back constantly and won't skip a beat if I notice anything out of the ordinary, but to be officially done with it all is such a wonderful exhale to a breath I've been holding for 2 years. We're not scheduled to return to Children's until next June!</div>
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Now that we're in the full swing of summer I catch myself staring at my neighbors' and friends' babies. I eye their sun kissed backs to check that they're straight. I hold my neighbor's little girl who is the exact age Olivia was when her first cast was put on and I'm reminded of Olivia's inability to snuggle up to me the way this little one does because she was inhibited by a rigid cast. I can't lie and say that I don't have moments where I become sad and feel robbed of those soft cuddles. </div>
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Those feelings are short lived because I tell myself that there are worse things that parents and children in this world go through and that this little hiccup in our life is really a grain of sand in the broad scheme of things. I am reminded of how blessed and lucky we are that we had access to casting every time I look at my daughter standing straight and tall. What could have been a painful, surgical nightmare was avoided thanks to the efforts of so many. </div>
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I know I've said it before, but overall I am glad we went through this as a family. It made us appreciate the little things we could have so easily taken for granted. It proved how strong we are as a family. It also gave me the opportunity to spread the word about Infantile Scoliosis and help other families. I would NEVER had known this even existed had it not entered our lives! </div>
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I can't begin to express my gratitude to everyone who has read our blog. When we began this journey it became a goal to help other families going through this, and to educate others that this exists. I can proudly say we have been successful. At our last appointment one of the first things Dr. G said to me was that people are reading the blog. Families come in and they talk about the blog. That's the beauty of this whole thing. Though we are coming to the end of our journey, there are so many other families out there whose journey is just beginning. Yes, that first diagnosis is a terrifying thing. I've written this blog to show that it's doable, that there's a light at the end of the tunnel, and that you're not alone. I also wrote it so Olivia knows her history, her story. </div>
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Everyone's experiences are different. Everyone's story is different. Everyone's happy ending from scoliosis comes at different times. We were VERY lucky. Olivia is a fast grower, which was in her favor. A minimum year of casts turned into 10 months. A minimum year of bracing turned into 5 months. That is not the norm. Regardless, no matter how long your journey is you will get there. </div>
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Though I won't be posting very often I'm not disappearing off the grid. I will continue to pop in now and then so you can hear about our adventures as a cast free family. I am ALWAYS accessible via Facebook if you have any questions or just need to hear a reassuring word or two. I won't be a stranger, so don't you be one either. </div>
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Thank you. </div>
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There's a light at the end of the tunnel. You are not alone.</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com1tag:blogger.com,1999:blog-518955495405743582.post-72537704931120347562014-01-01T13:48:00.001-05:002014-01-01T13:48:12.006-05:00Where Have We Been?!?!?!<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Hello! </div>
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I know! It's been over 6 months since the last time I've written. No news is good news right? Brace life for the most part has been pretty smooth and quiet. Olivia continues to be a trooper, though she does complain now about it being too tight. </div>
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When we went for her appointment in July, one month after receiving her brace mind you, NOPCO was concerned with her growth and wanted to replace the brace. ($$$$) After a second opinion and some gentle persuasion they let us keep the current brace. We have an appointment this Friday morning, which we are anticipating a brace replacement. This, even with insurance, is quite the expense, and a disappointment seeing as we were told she would only need one brace for the duration of the year. What can I say? Our daughter is a weed and just won't stop growing!</div>
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The good new is her back is holding beautifully. It's such a wonderful thing to see that nice straight line!</div>
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Outside of the world of scoliosis our family has experienced a great new change! We moved into our new home on Labor Day Weekend. Olivia LOVES her new room and big girl bed. She enjoyed a wonderful summer full of swim lessons, dance class, yoga and beach days in Maine. These are activities we will NEVER take for granted. </div>
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Here our some pictures so you can see how much our nugget has grown! </div>
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Coming soon....A new post over the weekend. :-)</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com0tag:blogger.com,1999:blog-518955495405743582.post-56635083256341801372013-07-04T22:58:00.000-04:002013-07-04T22:58:16.896-04:00"Brace" yourselves ;-) <br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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We certainly enjoyed a few weeks cast and brace free. Olivia was fitted for her brace on Friday June 21st. The week leading to it I prepped her as best as I could explaining that she was going to get a new "turtle shell" and that it was like the cast but it could come off. She would always say "yes" to me. I would ask her how she felt about that and she would say "sad. no cast". So I was very nervous about how the day would go. As always, she surprised me!</div>
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We went to NOPCO (National Orthotics and Prosthetics Company) at Children's for 11 AM. I misunderstood at our last appointment and I guess that I had to make a nurse's appointment directly following our brace appointment to receive information on wear and care for the brace. I didn't learn this until the following Monday. Oh well. Our brace tech, Ben, did an awesome job filling us in and we haven't had any problems so far. </div>
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I had been warned by other scoli parents that NOPCO can take a long time, so I was prepared. I'm telling all of you so that you can be prepared as well. Our appointment from start to finish went from 11:00 AM to 4:30 PM. Why does it take so long? Your brace tech uses this time to trim down and better mold the brace to your child to ensure that they can wear it comfortably. </div>
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We went in and Olivia had to put on her undershirt, and Ben brought in her brace. Initially the brace was VERY high, and VERY low. I remembered at our initial fitting being told that they make the brace in full and then trim as needed. Ben (who Olivia still talks about btw) put the brace on her and then marked in sharpie where to trim. He then took it off and went into the shop to trim it down. He was back in about ten minutes and had her put it on again, made more marks for trimming and then said we could come back in a half hour. At that point we went to get some lunch.<br />
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When we came back she put the brace on again and he had her sit in it so he could look at her back side, under arm, and legs. He made a few more marks, trimmed and came back. Each time he put the brace on her he asked her how it felt, and she would tell him it was tight and show him wear. It was amazing how well she was communicating. She was also extremely well behaved and did everything Ben told her to do. He really took to her and you could tell he was doing everything he could to make sure she was comfortable in the brace. He then took the brace one more time to the shop to flare out the legs a bit to make it more comfortable when she sat. </div>
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When he came back he showed me how to put it on her and made the initial tightening marks on the velcro and the final tightening marks. Olivia needs to "break in" the brace. Because she was in a cast breaking in for her is a little different than for an adolescent wearing something on the torso for the first time. We were able to start her on stage two and tighten it all within the first week. You can see what I mean <a href="http://bostonbrace.com/images/customer-files/BostonBraceScoliWearCare.pdf" target="_blank">here</a>. For the first five nights she didn't wear the brace overnight. She has been wearing it overnight since, with no complaints. </div>
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Ben wanted to make sure things were going well so when we go back on the 26th of July he wants to see her and check out the brace. As we were checking out (and I was maxing out my credit card $$) Ben gave Olivia sticker AND chocolate. Heehee. </div>
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On the 26th we go to see Dr. Glotzbecker so he can check out how she's doing in the brace, and they will do an xray to make sure the brace is working ok. </div>
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Olivia loves her brace. She shows it off to everyone she meets. What I think helped was when she went to play with a group of kids and one of them hugged her and he looked at me and said "Whoa. Her back is hard....what's on it?" I had Olivia show him her brace and he was like "That's cool!" She was really proud of that. She loves the attention.</div>
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Brace life is different from cast life. For starters she can get wet and it's ok! We just wipe the brace down. She gets four hours a day out of the brace which means cuddles and baths! The brace affects diapering. Because it rides to her tush in the back we have to take it off for every change. Luckily she's been really good about it so far. If she ever gets difficult about wearing her brace then this won't be fun. We are going to attempt potty training, but she has been meeting this with some resistance so we're going to ride things out the way they are at the moment. </div>
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The brace is very slim, so when she wears certain clothes you can't even tell she has it on. Technically she's supposed to wear her pants over the brace meaning they all need to be elastic waist. I've been finding, however, that even though I put them over the bottom velcro, they still fall under the brace when she runs around and plays. Trial and error I guess. Dresses are pretty awesome right now.</div>
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On Wednesday Olivia took her first swim class in over a year and a half. She clung to me for dear life, but sang all the songs and overall had a nice time. She also had her first dance class, and was amazing. Overall, life in the brace so far has been going very well, and it's shaping up to be a great summer!<br />
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com4tag:blogger.com,1999:blog-518955495405743582.post-34295942830455601012013-05-26T08:35:00.000-04:002013-05-26T08:35:10.258-04:00There's a Light at the End of the Tunnel!!!!<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Oh happy day!!!! I want to start this blog post with before and after pictures.</div>
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Here is Olivia's spine on 06/07/12</div>
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<span style="font-family: Arial, Helvetica, sans-serif;">And here is Olivia's spine out of cast yesterday 05/24/13</span></div>
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How amazing is that?!?!? Ten months in a cast straightened out a 40 degree curve. She did not have to endure painful surgeries, rods, pins or anything invasive. I am forever grateful to Heather Hyatt Montoya for seeking out Dr. Min Mehta for treatment for her daughter. I am also forever grateful to be living so close to the number one Children's Hospital in the country. Boston Children's Hospital is just amazing. I've said it over a thousand times and I will say it a thousand more. Everyone there is wonderful, and they are dedicated to what they do.</div>
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I would also like to personally thank those who have taken care of Olivia over the past year, particularly Dr. Michael Glotzbecker and his nurse Deb Cranford. Both have been remarkable through this whole experience, truly working to give Olivia the best care possible. They were always available to answer any questions, and were on hand if we had any problems or concerns. Because of them Olivia will be able to live a normal life. Thank you both!</div>
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Now we're not out of the woods yet. Now we move onto the next phase in our journey; the brace. For the next year Olivia will wear what is called a Boston Brace. This brace was created by Boston Children's Hospital specialists headed by Bill Miller back in 1975. It will work as a retainer to help her spine maintain its straightness. She will have to wear it 20-22 hours a day. We will have to start over now and learn about life with a brace as it will be different than the cast. Basically it means more blog tutorials on ways to do things with a brace: clothing, diapering, skin care etc!</div>
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Here is a short video which talks about the Boston Brace:</div>
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<span style="background-color: white; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; text-align: -webkit-auto;">Needless to say yesterday was a pretty awesome day. We got to the hospital at 12:30 to have lunch with Kathleen. </span></div>
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<span style="background-color: white; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; text-align: -webkit-auto;">We finished early so Olivia had time to go and look at the water wall.</span></div>
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<span style="background-color: white; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; text-align: -webkit-auto;">Then we went up and had the cast removed. Her back looked amazing.</span></div>
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<span style="background-color: white; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; text-align: -webkit-auto;">Then it was off to </span><span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">X-ray. Our x-ray tech Brian was great. He talked through everything he was doing and Olivia was a perfect patient standing very still for her "picture." The last time we did her x-ray she wasn't standing on her own yet. Brian let us look at the images as they were loading on the computer screen. I was actually a little nervous because as you can see her spine isn't perfectly straight, and I wasn't sure if it was going to be straight enough. I told Brian that I wanted a CD of the images for my records, and he said he would take us to put the order in. He gave Olivia three stickers for doing such a great job and then it was back to Orthopedics to await the results. </span></span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">Olivia enjoyed all of her opportunities to color while she waited.</span></span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">We went straight to a room and Olivia placed bear in a chair, sat in her own seat, and we sang The Wheels on the Bus while we waited. Dr. Glotzbecker came in holding two pictures which he handed to me. They were the two images from above. He told us that her back looked great and he would have put her in a brace at this point regardless of whether or not it was the summer. He said that her spine looked great and that it was exactly what he wanted to see. It was then that I was able exhale. I was as thrilled as I was the day Olivia was born. </span></span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">Dr. Glotzbecker then filled us in on the next steps. Olivia will be in a brace for the next year. After she gets her brace we will go back for a follow up with Deb in two weeks to make sure everything is fitting Ok. She will also be x-rayed in the brace to make sure she's positioned well in it. Then she will see Dr. Glotzbecker July 26th to see how things are going. Following that she will be seen every three months with an x-ray every six. If all goes well and remains well she will be able to graduate from the brace in a year. </span></span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">I thanked Dr. Glotzbecker and Deb, we shook hands, and took pictures and then Olivia and I were off to NOPCO (National Orthotics and Prosthetics Company). There are multiple NOPCO locations, including one right in the hospital. We went down there, I filled out some paperwork and Olivia became friends with a nice boy named Charlie. The receptionist informed me that our insurance will cover $750.00 towards the brace, but that the braces cost between $1800 to $2200. This is just an FYI to all you scoli parents out there. The braces are expensive! </span></span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">Chelsea was the brace specialist who took care of us. She was wonderful with Olivia. Every Boston Brace is custom made for each patient, which requires a lot of measuring. Chelsea had Olivia wear a special undershirt, which is worn under the brace. This way it is figured in to the measurements, and because it's form fitting it helps her see how Olivia carries herself. </span></span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">After doing all the hand done measurements Chelsea then did a digital scan of Olivia's torso. It was amazing to watch. She placed this device on Olivia and then I had to keep Olivia completely still as she went around her with this infrared scanning device. Then an exact replica of Olivia's torso came up on the computer screen. When they said custom made they weren't kidding. </span></span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">We also got to select a pattern for the brace. There were over 50 different patterns to chose from. I let Olivia pick. She went with blue butterfly. I asked her to pick a pattern five different times over the course of our visit and without fail she picked the same one all five times so that's what we'll go with. </span></span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">Here are some pictures to give you an idea of what the brace will look like.</span></span></div>
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Back View</div>
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Front View</div>
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Back View</div>
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Left Side View</div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">I was given a brochure to read about the brace and how to care for it and was told that we would have a nurse visit on the day of the actual fitting to also be taught how to care for Olivia in the brace. I was told that the brace fits differently from the cast in that it will sit lower on the hips. Diapers will have to be worn under the brace meaning that the brace will have to either be loosened or removed for each change. When Olivia transitions to being potty trained they recommend that she should wear her underwear over the brace because it'll be easier for her to be independent with it. She will also not be able to wear anything fitted on the waist unless it's big enough because it must go over the brace. It'll all be a trial and error, just as it was when we got the cast for the first time. </span></span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">Olivia will get her brace on June 21st. We are going to enjoy every day of this nice long break. We have already had plenty of cuddles and tickles as well as a great bath. I'm so glad that we don't have to do sponge baths in the sink anymore! </span></span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif;"><span style="font-size: 15px; line-height: 20px;">Thank you to all of you who have been keeping up with all that has been happening. Your support has meant so much to us. To the parents out there who have a child with scoliosis there is a light at the end of the tunnel. You're great parents doing a great thing for your child. Everyone please spread the word that this exists and that there is treatment. Infantile Scoliosis is on the rise and the more parents who know about it, the better. Thank you again! More to come!</span></span></div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com2tag:blogger.com,1999:blog-518955495405743582.post-21685424846625383782013-05-23T20:56:00.002-04:002013-05-23T20:56:45.829-04:00Tomorrow's the Day....<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Tomorrow is the big day. At 2:00 P.M. Olivia's 5th cast comes off and she will be x-rayed out of cast for the first time since she was x-rayed last June. I am so excited/freaking out/hopeful/scared/optimistic. We want the spine to measure less than 15 degrees. If she's 15 or less and can maintain that in a brace then she will be cleared in a year. If she's still not there yet she'll get the brace for the summer and we'll talk about casts again in the fall. If she can't maintain a low number in the brace then we will talk about casts again. Please pray for a nice low number so we can happily move into the next phase of our journey; the brace. More tomorrow....</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com1tag:blogger.com,1999:blog-518955495405743582.post-33378933571954065302013-04-21T21:34:00.000-04:002013-04-22T18:47:22.988-04:00Walt Disney World <br />
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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T minus 5 weeks until cast number 5 (maybe last cast) is removed! There is a light at the end of the tunnel! So far so good. It took a little adjusting to having the undershirt removable, but it has really helped the skin on Olivia's hips, and she doesn't look as grimy because I can remove and wash the shirt and alternate between the two shirts we have so it's been nice. It's also not as hard as I thought it would be to remove and put on the shirt. Olivia is really helpful. We just do yoga poses to get the shirt back on. I tell her to do "down dog" pose when working the back side, "half moon" pose when working the sides, and then tell her to suck it in when working the front. She likes the game of it!</div>
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We just returned from our vacation to Walt Disney World in Orlando and had an amazing time! Olivia loved every second of it. She met many characters and most of the princesses. She also did most of the rides. I'm writing about this here because I feel I should mention a great program that Disney provides, which was helpful to us for our visit. When you go to the parks you can get what is known as a Guest Assistance Pass. With this pass we were able to avoid long lines and were provided with shady wait areas when needed. This was great because of my concern with Olivia overheating because of the thick cast. There's no jumping through hoops required and this service is free. If you are planning to go with your little one and they are in a cast, or have any other physical concerns then I highly recommend getting this pass. </div>
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I was also concerned we may have a hard time getting through security with Olivia's cast, but we got through fine with no questions asked. </div>
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On Monday we went to the Magic Kingdom. Here are some pictures from that day.</div>
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Our favorites from Epcot:</div>
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And lastly from Hollywood Studios:</div>
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It truly was a time we won't soon forget.</div>
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I should also note here that it was a somber week for us as well with all that had happened in Boston. In spite of the tragic events that occurred, the response from the civilians involved as well as all the Boston hospitals taking in the wounded, was a true testament of how wonderfully resilient, brave, and strong the people of Massachusetts are. I am proud to be a life long resident of such a "wicked" awesome state.</div>
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Boston Children's Hospital sent out a poignant letter in regards to the bombing:</div>
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<span style="color: #38761d;">"Dear Boston Children's Hospital Friends,</span></div>
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<span style="color: #38761d;">What should have been a day of celebration became a day of tragedy. We are deeply saddened and troubled by the horrific attack at the finish line of the Boston Marathon.</span></div>
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<span style="color: #38761d;">In the midst of this crisis, so many hospital friends have come together, offering moral support, asking if there is anything they can do to help, and checking on the safety and security of our runners and staff. We are grateful that all Boston Children’s employees involved with the Boston Marathon—as well as the 210 runners on our Miles for Miracles team—are safe.</span></div>
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<span style="color: #38761d;">We are proud of our runners for their courage in the face of chaos and the extraordinary hospital staff that came together to care for the youngest victims of this tragedy. David Mooney, MD, MPH, director of our Trauma Program, was on-hand when the first patients arrived on Monday.</span></div>
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<em><span style="color: #38761d;">This afternoon we were faced with a gut-wrenching situation: children needlessly maimed by a terrorist. I cannot be more impressed with how the hospital staff rose to the occasion. From clinical assistants to attending neurosurgeons, hospital personnel who were close enough to make it just came in, many walking, to see if they could help. Because of their selfless dedication to the children we serve, we had teams of people ready and waiting for the injured children we received, with additional teams on standby in the ED and the OR in case more children should arrive.<br /><br />I've always been proud to work at Boston Children's, but never more than today.</span></em></div>
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<span style="color: #38761d;">Dr. Mooney speaks for all of us at the hospital. In the wake of this tragedy, we thank our extraordinary Miles for Miracles team and turn to our community—our employees, and you, our unwavering supporters—for inspiration. You inspire us with your dedication to the hospital, our patients and families, and each other."</span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px;">It continues to be a relief to know we live so close to such remarkable care, and we are proud to be a part of the Children's Hospital family. I extend a very special thank you to all the first respondents, police, fire, EMTs, and hospitals that have done all they have over the past week, and on a daily basis. </span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px;">If you would like to make a donation to help the victims of the marathon bombing you can donate to The One Fund by clicking <a href="http://onefundboston.org/" target="_blank">here</a>. Thank you.</span></div>
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<span style="color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px;">Looking forward to our next adventure! Cast 5 removal and new brace! </span></div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com1tag:blogger.com,1999:blog-518955495405743582.post-54378528401919733962013-03-27T21:54:00.000-04:002013-03-27T21:54:03.687-04:00Is this cast our last????<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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It may be!!!! We received great news yesterday morning when we went in for Olivia's fifth cast. They will be x-raying her in May and fitting her that day for a brace for at least the summer! That means no cast in May, and this may be her last cast!!! (Trying not to get too excited, but it's still exciting to at least have a break)</div>
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Here are the scenarios that can happen.</div>
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1.) If her x-ray shows her curve is under 15 degrees they will monitor her in the brace to make sure she can maintain that straightness. If she does then she can stay in the brace until next June and be done with it.</div>
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2.) If her x-ray shows her curve is under 15 degrees, but gets worse in the brace then we will discuss going back to casts in the fall. </div>
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3.) If her x-ray shows that she is more than 15 degrees then we'll discuss casting again in the fall. </div>
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So, think positive straight thoughts for her big x-ray in May!</div>
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Here is some information on the next phase of our journey, bracing. She will be put in a Boston Brace. It is called a Boston brace because it was created at Boston Children's Hospital! This is a commonly used brace across the country. It is made of foam and plastic and is personally tailored to Olivia. She will be measured for hers at our next appointment when this cast comes off. It takes about two weeks to make the brace so she'll get a nice, cast and brace free, break. We will then go back and have her brace fitted. She will then wear this brace 20-22 hours a day allowing for baths and full tummies after meals! We were also told that if there are days that we need her out of the brace a little longer, say a beach day, that it would be acceptable! This will be her only brace for the course of the year if she doesn't go back to casts, and she will be checked out by Dr. G every 3 to 4 months. Here is a video about the brace. Though it's older children it's relatively the same process. </div>
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So......YAYAYAYAYAY!!! There's a light at the end of the tunnel.</div>
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Monday night we enjoyed one last bath, and our hospital report time was 8:30 for a 10:00 "surgery." Traffic was fun, but we got there. Olivia's an old hat and knew where to go and what to do! Everyone comments on how calm and chill she is. Olivia's new friend Joyce checked her out, and we played the waiting game. </div>
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Dr. G came in, gave us the good news about May, and told us about how this cast would be a little different. Instead of building the shirt into the cast they are leaving it in one piece and loose from the cast. This means that her whole torso is covered. He says that this works much better for the sensitive skin and will reduce the rubbing. We signed all our usual paperwork, took our usual picture and were on our way the the O.R.</div>
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Olivia got to bring her bear in with her this time and with a little song from Mommy and a cuddle from bear she fell asleep without a struggle or a peep. When it was time for us to see her in recovery she was already up and enjoying an apple juice. </div>
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We checked out her cast and we were a little concerned about the snugness of the left hip. They called the cast tech and she came by and trimmed it without question. This is the cast tech we've had for Olivia's last three casts and I'm happy to say things have become much more pleasant. She also brought us an extra shirt if we need to change the shirt for whatever reason. I guess there are Youtube videos on how to do this, so I will have to do my homework. We've never had this option before. I have to say I'm really liking it so far. We also taped up her cast right in recovery.</div>
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Sadly, Olivia was not feeling well and had many unpleasant diapers throughout the day following surgery. Also, she has now developed a cold. It's been an interesting 24 hours. I did inform the nurse who called to check in this morning. I'm glad that it developed after the cast so we didn't have to delay anything. I feel badly that she's sick though. </div>
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Last night we were a little worried about the way the cast was pressing on her lower back and she seemed to be complaining about it. I emailed Dr. G and heard back within the half hour that if we needed to trim some more we could come in on Friday. My mother found a grain of plaster between the cast and the shirt and we think that's what was bothering her. So far today she didn't complain at all and her skin is looking good. </div>
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Overall, we are feeling really good about everything. Thank you all for all your support and positive thoughts. Our next stop before her cast comes off is Disney!!!! I will be sure to post about that! Here are some pictures of her finished cast. She lifted her shirt on her own to show all of you. :-)</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com2tag:blogger.com,1999:blog-518955495405743582.post-60910607641790498122013-03-24T19:59:00.000-04:002013-03-24T20:03:02.059-04:00Happy Birthday Baby Girl<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Last week our baby girl turned 2. Where the last two years went I'll never know. I'm afraid to blink because if I do she'll be 15! </div>
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The best birthday present Olivia received was another full weekend cast free, which we are currently enjoying. My husband and I have been saying that we have been blessed with one happy child, but she's never as happy as she is out of cast. </div>
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I took Friday off from work and we went to the hospital early to enjoy lunch at Au Bon Pain. We then proceeded upstairs to get her cast off. Olivia had been talking all week about her cast coming off. We were all excited this time, because man did it reek! When we walked into the cast room, Olivia became scared and began to cry. She usually cried a bit, but this time I could see the fear. She did calm down and even gave the cast tech, "Big O" a fist bump. This time her back not only looked great, but was covered in glitter! Ha! Dr. G came and looked at her and I reminded him about her x-ray in May. I'm trying so hard to not get my hopes up. I really, really, really want this next cast to be her last.</div>
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Her skin looks great and has remained looking great through the weekend. Her belly isn't even as purple or dry as it has been in the past. I'm glad that we split the cast and I will have to be very diligent this time about the tightness. </div>
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We have been enjoying lots of cuddles and bath times!</div>
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The best part of the weekend, however, was getting to share her squishiness with all of her family and friends at her royal highness' birthday party. Two weeks prior we took some pictures of Little Miss at the Fall River Carousel. Here are some pictures from both. </div>
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It's been a wonderful weekend. Of course all good things must come to an end. Her next cast will be applied Tuesday. Let's all think positive thoughts that this will be her last cast. Then we can move on to the next phase....life in a brace. Well, off to enjoy more squishy hugs!</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com2tag:blogger.com,1999:blog-518955495405743582.post-32307516768776019512013-01-25T18:51:00.000-05:002013-01-25T18:51:57.329-05:00Houston, we have a problem!<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Well, I tried to be very optimistic about cast number 4 and have been telling myself that it's fine, and I'm just being an overly worried mom. It all came to a head last night and I decided that I better bring her in to have it checked. It was just too tight around her middle. Last night her stomach was very red and swollen and she cried when you touched it. We iced it and hoped. It was just as bad the next morning so I decided to call. </div>
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The triage nurse agreed with my concerns and told me to bring Olivia in. She also confirmed it with Dr. G's nurse, informed me that Dr. G was there and to bring her in when I could. At this point I was already at work without a substitute teacher in place. My students' parents are absolutely amazing. One of them who is on the sub list came in to take my class for me. I whipped some plans together and I was on my way.</div>
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I picked up Olivia and up to Boston we went. When we got there we sat for a few minutes and they were taken to the cast room to look at the cast and her stomach. Dr. G also came in and expressed his concerns with the skin irritation. As he has said her skin has always been a concern because she is so fair. He was impressed that she had made it this long without any skin issues. </div>
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In the end Dr. G had the cast tech split the cast at the waist point to allow the cast to give there. He said that we will have to watch to make sure the cast doesn't become too loose. If that happens then we will go back and they will add a new layer of fiber glass to that area. Hopefully this will work. </div>
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We'll also be putting on a thin layer of hydrocortisone ointment to the skin there to help it heal. I'm just glad we didn't have to replace the whole cast! Olivia seems to be in much better spirits now so fingers crossed. :-) She also had a nice time visiting Miss Kathleen, who is a dear friend of mine who works at the hospital. Whenever we enter the hospital now the first thing out of Olivia's mouth is "Kathleen!" Ha!</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com3tag:blogger.com,1999:blog-518955495405743582.post-80849361696705024802013-01-24T19:29:00.000-05:002013-01-24T19:34:36.392-05:00Cast #4...<!--[if gte mso 9]><xml>
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
<div style="background-color: white; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;">
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Sorry this took me so long to write. It’s been a very busy
couple of days! When I left you all Monday night I finally went to sleep around
midnight only to wake up for the day at 2:30, because I was so concerned about
getting to the hospital in the snow. Guess what? We hardly got any snow! That
was a plus. We were out the door by 4:45 and got to the hospital on time.<o:p></o:p></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"> The little munchkin
is such a pro now. She shows them her medical bracelet when they ask, she lets
them take her blood pressure. She even talks to the nurses now! (I mean it’s
barely audible, but a huge step).<o:p></o:p></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"> As always Dr. G came
by beforehand to chat with us and look at Olivia. I told him how impressed I
was by her back and how I can run my finger right down her spine. He looked at
her and told us that he will X-Ray her at 10 months instead of the year. That
means her cast might come off in May instead of July!!! This was VERY exciting
news! <o:p></o:p></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Anesthesiology came to talk to us as well and they gave
Olivia a scented face mask to play with to prep her for anesthesia. She got a
big kick out of this. When it was time to go she walked with her “team” and me
to the OR cool as a cucumber. She loves the attention she gets because of her
red hair. Multiple nurses remembered her this time from last time. One
remembered her because of her allergy to peaches, and others remembered her
because of the hair. Ha! <o:p></o:p></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">It’s funny. Every time we do this it’s different. This time
we laid her down on the table and I held the mask over her face and sang to her
till she fell asleep. She cried a little at first, but then was ok. I sang
ABCs, Ba Ba Blacksheep, and Twinkle Twinkle (yeah I know…), and then she was
out. It took her longer than usual to fall asleep. <o:p></o:p></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">We waited our usual hour in the waiting room, I enjoyed my usual
breakfast sandwich from Au Bon Pain, and crocheted a flower for her to wear
after recovery. While we were in the waiting room Brian got a text from his
sister letting us know she was having her baby and that we were needed to watch
my niece for a little while. <o:p></o:p></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Olivia did great and we were off to recovery to wait for her
to wake up. She had the same recovery nurse as last time, which I was happy for
because I liked her. Last time Olivia was already awake when we got there. This
time she was out for over an hour! <o:p></o:p></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">She woke up calmly as always and enjoyed a can of apple
juice and a popsicle. I looked over the
top and front of her cast and it looked really good. The length also looked
good including the bottom. It’s tricky because she is not encouraged to do a
lot of moving following anesthesia so I never get a good look at how the cast
fits on her until after. We also thought she might puke at one point (she didn't), so we were given a barf bag just in case. Olivia enjoyed her new "hat."<o:p></o:p></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Olivia was discharged and we were off to Ashland to babysit.
Olivia had a great afternoon with her cousin. She played and ate and was fine.
By 5:30 there was still no baby and we were relieved of our sitting duties and
went home. I took a shower and was heading out for rehearsal when I noticed the
bottom of Olivia’s cast. It was looking awfully tight and she was getting red
marks on her hips from the skin being pinched between the cast and her pants.
This made me nervous. We iced it and I warned my mother to keep an eye. Oh! And my sister in law gave birth to a bouncing baby boy! My first nephew!<o:p></o:p></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Olivia slept through the night, which was a first in a
month! She woke up VERY irritable and cranky the next day. She sounded congested
and just seemed miserable. Her hips
looked much better, though the cast still seemed tighter than usual in that area. I dropped
her off at my mother's and checked in through the day. She didn't eat much and just wanted to sleep all day. My sister said that she was also complaining about her belly. I wasn't sure if she was sick, or if it was the cast, or what. When I brought her home she seemed fine. She was pleasant, ate well, and slept through the night again. She was also fine all day today. I think she was still working Tuesday out of her system and readjusting to wearing the cast again. She's such a trooper.</span><o:p></o:p></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">I called today to schedule Olivia's next cast. Dr. G is letting us take it off on a Friday and having the new one put on on a Tuesday again. I had asked because it falls around her birthday. So exciting! She gets to have her birthday party cast free! What an awesome birthday present! I will leave you with pictures of the cast. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">If you are reading this and haven't liked our facebook page yet please consider "liking" it. It helps me to see how many people I'm reaching out to. I have been so pleased with the number of likes we have received. Again, in addition to this blog being a history for Olivia it is also intended to inform and to help others who are going through the same thing. Spread the word! Thanks! <3</span></div>
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<br />Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com6tag:blogger.com,1999:blog-518955495405743582.post-44088334950887056322013-01-21T19:17:00.003-05:002013-01-21T19:23:58.363-05:00Big Weekend!!!!<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Well hello! Eight weeks already!!! Happily, it was a very uneventful cast. If you remember I was a bit worried that we were going to have problems. This was the first cast where she complained that she was itchy. That will be expected as she becomes more aware, and with the dry winter months. Otherwise we had no problems. It was a nice clean cast. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">We had a wonderful Christmas and Olivia did very well meeting Santa.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Our best Christmas present, however, was where the 8 weeks fell for a cast change. Because it's Martin Luther King weekend her cast came off on Friday and the new one will go on tomorrow! We got three whole days of tubby time, and cuddle time! It was great!</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">We went to Children's for 3 on Friday, and Olivia is like a pro now. She went into the cast room, had a seat on the bed and calmly laid there while the cast was removed. I was so proud of her. While we were there we ran into another casting family. Their little one was having her first cast removed. She's 10 months old. It is so great to connect with other families!</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Olivia's back was pretty clean this time, not as dirty as the last cast. Her skin looked awesome, and she only had redness around her belly. The redness at the pressure point on her spine is less and less each time, which is a good sign. Her ribs and spine feel great. It is such a relief to know it's working. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">When I put her down to walk out of the cast room she made me laugh because she was swinging her torso back and forth, pleased with the freedom her upper half had. I feel badly that we'll have to put a new cast on tomorrow. She's so much more pleasant without it. Hahaha. We're at the halfway point, so the time only gets smaller from here!</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">After our appointment we went to visit friends where Olivia enjoyed a candle light dinner and some tubby time with her dear friend Oz.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">On Saturday we celebrated Papa Rog's birthday! We have also moved on to another new adventure! Oz has been working on his potty training which then sparked an interest in Miss Olivia. Out we went to buy her a potty. Tonight we had a successful run!</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">We continued our cast free world tour on Sunday and headed up to see Grama and Grampa. Auntie Shan and Aliyah came over too! We are still waiting for the arrival of Olivia's new cousin. We watched the Patriots lose (Boo!), and Olivia enjoyed another tubby time with Aliyah.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">We ended our fabulous weekend with a play date at E's house. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Tomorrow we report to the hospital for 5:45 AM. With the threat of a snowy commute we'll be getting up around 4 AM. That means an early bed time for all. Fingers crossed for a safe trip, and that Olivia won't be too upset when she wakes up wearing her next cast! </span></div>
Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com2tag:blogger.com,1999:blog-518955495405743582.post-77980363420703604102012-11-28T22:20:00.000-05:002012-11-28T22:20:04.891-05:00Pictures of Cast # 3<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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As promised here are some pictures of Olivia's current cast. Let's start by going back in time shall we? Here are some pictures of Olivia's first cast.</div>
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Her second cast...</div>
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And her current cast...</div>
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Before Trimming</div>
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After Trimming and Taping</div>
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It may look like she's standing on an angle in that last picture, but the cast actually is sloping up there. I did not see this yesterday, or I would have asked for that to have been trimmed as well. We'll see how it all turns out. I will just be keeping a close eye on her skin for now. Here are some pictures of us enjoying A Charlie Brown Christmas. Have a good night!</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com2tag:blogger.com,1999:blog-518955495405743582.post-43998980327829919672012-11-27T17:31:00.000-05:002012-11-27T17:50:36.303-05:00Cast #3<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Well, cast 3 is on, and I must say that this experience was totally different from cast 2. I find that so interesting. The place doesn't change, we don't change, but yet the results did. In the end it all worked out, but man Brian and I were just a hot mess the whole day. </div>
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It started with us hitting traffic and being 15 minutes late. That wasn't a big deal because we need to be there an hour and a half early anyway, AND they were behind. Usually, they're right on schedule, but they were 20 minutes behind today, which worked for us.<br />
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Olivia was in such a great mood! This was the best she's been since we've started this process. She didn't give them a hard time with anything. The best was when we went in for anesthesia. I've been prepping myself for the past week. It is the most stressful part for the both of us. I always feel terrible because she's normally terrified and I have to hold her down, and I get all worked up. This time she calmly sat there with the mask on and conked right out! I was absolutely amazed.<br />
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When we went to recovery to see her she was wide awake and ready for her second popsicle. This was also a first. She's usually out cold when we go to see her. They said she came out of casting awake and calm, and that she was a very good girl while they waited for us to get there. I should mention that when they put her under they do insert a breathing tube, so again, I'm shocked that her behavior is so good between the discomfort of the cast and the sore throat. We also have to add incoming molars this time, too. </div>
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Anywho, I was not to thrilled with the way this cast came out. This was also a first. The mushroom cut out was not wide enough for her belly, and the cast rides low on the hip and high on the chest. The last one was short and fat looking and this one is tall and skinny. I don't know if it's because we complained that the last one was way to tight around her lower belly, and this is their way to compensate. We'll see. We did need to have this one cut. Unfortunately, the cast tech was in for another cast application so we had to wait in recovery for another hour until that was done. We entertained an irritable Miss O by riding her around in her stroller. She wasn't allowed to walk around, and she couldn't anyway because we've lost one of her shoes! Like I said, we were a hot mess.<br />
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The cast tech was initially reluctant to cut the cast, which I did not like. I mean I know how the cast is supposed to look and if we left it the way it was her tummy was going to break down rapidly. She very liberally cut the belly out a little bit more and trimmed down the top. I'm going to have to redo a lot of the moleskin, because it seemed haphazardly thrown on, and a lot of it was detaching due to particles of plaster getting into the sticky part. Again, not too thrilled. I'll have to research who the cast techs have been over the past couple of casts....</div>
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Diapering may be a challenge with this one because of how low it's riding. We'll see. We will definitely be scheduling this cast for 8 weeks and not 9. Fingers crossed she can hold out with this one. In the end we stayed at the hospital for lunch because it was past noon by the time we were done and she was famished. We spent a grand total of 6.5 hours at the hospital today and got home around 3. Long day. </div>
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In conclusion, the positive of the day was how amazingly wonderful Olivia was. The con....I'm a bit skeptical about this cast. I will keep you posted. I will also post pictures of the cast after I've fixed it. These pictures are before the cast tech came to fix it. Good thing I had pictures of the previous cast, otherwise it would have been a challenge to get the cast tech to trim it. In the future I hope I do not have to do that. We are, of course, still very pleased with Olivia's treatment and all Children's has done for us. It was just a very different experience. Again, thanks for reading!</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com3tag:blogger.com,1999:blog-518955495405743582.post-60009073852194949212012-11-26T23:34:00.004-05:002012-11-26T23:38:22.184-05:00Giving Thanks and Ready for Cast 3<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Hello!</div>
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Long time no blog! Life for us has just been ssssoooo normal that I didn't have much to talk about. I know I've said it before, but I know that it can be reassuring the more you hear it; daily life is not hugely affected by casting. If you're a parent who is new to this PLEASE believe me when I say it. </div>
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We had a wonderful Thanksgiving and I know that Olivia is thankful for cast #2 coming off today. This cast was WAY too tight! The poor girl is purple from the belly button down. I must say she was in a wonderful mood tonight. Better than she has been over the past few days. I think she was really becoming uncomfortable in her turtle shell. Of course it also doesn't help that she's teething. Two new molars are coming in. With all that in consideration she has been a saint! I think 9 weeks in cast may be one week too long. It was supposed to be 8 weeks, but the Dr. rescheduled to this week. Here's hoping we can do 8 for the next one. </div>
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Mommy and Daddy are also thankful this evening for all the fun squishy baby time we had. Olivia also got a nice long bubble bath. How her back gets so filthy under that cast I'll never know. The front I can understand but the back?!?! How does it all get in there?!?! Unfortunately, she got a particle of something right on her pressure point leaving a couple of little pin holes on her back. Nothing serious, but my hope is the air will heal them up quickly so they don't become a problem in the new cast. </div>
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Anyway, here are some photos from Thanksgiving, cast #2 removal, and bath time. I know this may appear repetitive from the cast #1 post, but for us, it is a very special time that never gets old. I can't wait for the day we get her last cast off and she can run and play freely, and I can rub her back at bed time, or when she's sad, or sick. Don't take the simple joys for granted. Please enjoy the photos and I will post tomorrow letting you know how things go. Thanks for reading!</div>
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Thanksgiving</div>
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Cast off</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com2tag:blogger.com,1999:blog-518955495405743582.post-49887567987956245272012-10-31T23:44:00.001-04:002012-10-31T23:44:31.223-04:00Halloween!<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Olivia LOVES trick or treating and carrying around her basket of candy! It's funny because I remember in July, when I knew she would be wearing a cast, thinking to myself <i>what will she possibly be for Halloween? </i>Well, I realize now that that was a silly worry, because she wore not one, but two costumes and looked awesome in both! Here are some pictures of her as Abby Cadabby and as a cute little witch. Our fabulous day ended with an amazingly special email from a Mom who has been reading our blog. It truly means the world to me to know we have been able to help other parents going through casting. I hope you all enjoyed your Halloween!</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com0tag:blogger.com,1999:blog-518955495405743582.post-892434130836601372012-10-22T21:55:00.001-04:002012-10-22T21:55:04.980-04:00Checking In<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<div style="background-color: white; color: #333333; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 15px; line-height: 20px; margin: 0px;">
<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Hello!<br />
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Not much going on here. I just wanted to post a quick entry to let everyone know that all is well for the most part. I am finding that I have to closely monitor Olivia's skin with this cast. This cast seems to be tighter than the last one and so she's getting a lot of irritation on her hips. I added more moleskin (which was a pain in the butt) and I'm hoping that will help. This cast just didn't loosen up as much as the last one. I sure hope she can make it the full 9 weeks. It was going to be 8 weeks, but Dr. G rescheduled because he'll be away when she was initially scheduled to get her next cast.....fingers crossed. Here are some pictures taken over the weekend. I'll be sure to post some pictures of Olivia in her Halloween costume (Abby Cadabby). Until then....<br />
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<br />Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com5tag:blogger.com,1999:blog-518955495405743582.post-18420629908762606562012-10-06T18:48:00.000-04:002012-10-06T18:48:19.918-04:00Taken from the CAST support page....<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Hoping that this information answers any questions that may be bubbling. :-) Olivia's cast is under the shoulder and made of fiber glass, but the rest holds true....</div>
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<span style="font-family: Palatino Linotype; font-size: x-small;"><span style="font-size: 11pt;">Early Treatment Defined:</span></span></div>
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<span style="font-family: Palatino Linotype; font-size: x-small;"><span style="font-size: 10pt;">Facts gleaned from the article, “Growth as a corrective force in the early treatment of progressive infantile scoliosis” and personal time spent with Dr. Min Mehta, FRCS. </span></span></div>
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<span style="font-family: Palatino Linotype; font-size: x-small;"><span style="font-size: 10pt;">Why materials, proper windows, and the correct frame are non-negotiable in the treatment of progressive infantile scoliosis. </span></span> </div>
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<b><span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Why act Early?</span></span></b></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">First and foremost Early Treatment with serial corrective plaster jackets is simply a preventive treatment that is provided as soon as an infants curve is considered progressive. We now know that the infants curve will keep pace at the rate in which the child is growing, and that is very fast the first two years of life. If the child is diagnosed with progressive infantile scoliosis under 2 years of age, and treated with a series of specialized plaster jackets, the jackets have the ability to harness that vigorous rate of growth and train the young spine to grow straight gently, and permanently. The time it takes for the curve to grow into the corrected position is about equal to the time from initial curve detection, to its first proper corrective treatment by POP jackets.</span></span></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Parents are most often the first to detect their child’s scoliosis. Medical professionals typically advise parents to wait 3-6 months to determine whether or not the scoliosis will progress. However, there is a measuring technique that will help determine if the scoliosis is of the progressive nature, or self - resolving. The RVAD (Rib Vertebral Angle Degree) can be measured with a pencil and ruler, and will be able to give the surgeon an indication of what type of curve is present. There is a window of time that children benefit from Early Treatment. “The earlier treatment is begun, the greater will be the chance of success.” Time is critical for maximum correction and/or resolution of infantile scoliosis. </span></span> </div>
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<b><span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Why Plaster? </span></span></b></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">“Plaster-of-Paris” (POP) is the most comfortable and effective material in the application of jackets. Plaster of Paris is easier to mold to the child’s unique body shape than newer synthetic materials. The surgeons applying the jackets only have a certain amount of time to mold the jacket properly to the child’s torso, and since plaster doesn’t dry as fast as fiberglass, it allows them the time required to apply the best jacket possible. Other synthetic materials may not give the surgeons the time they need. Not to mention, overall comfort for the child, and time spent under anesthesia. Fiberglass is a very rigid material that dries fast and does not breathe with the child’s body at all. </span></span> </div>
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<b><span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Why Windows?</span></span></b><span style="font-family: Palatino Linotype;"> </span></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Properly placed windows are crucial in the proper application of plaster jackets. Each child’s curve(s) is individual and unique. Consequently, the windows in the jacket must address the child’s specific needs. Dr. Mehta has found that a large mushroom shape window in the front will give the child a lot of breathing room, while also providing rib flaps to support the rib cage. We call this a chest expansion window. The window in the back should start at the midline, and should be placed on the concavity side of the curve. This window allows the flattened ribs on the concave side of the curve to grow out, and the prominent ribs on the convex side to grow flat. This cut out will also be unique to your child, because every curve is different. This window will not only help to improve over all body shape, but will also address rotation. </span></span></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">With over 30 years of research and treatment, Dr. Mehta has found that these windows are absolutely essential in preventing chest wall deformities and that they allow ample room for normal breathing. In fact, proper lung growth is the primary reason for treating scoliosis other than cosmetic deformity. </span></span> </div>
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<b><span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Why use the correct frame?</span></span></b></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Scoliosis occurs three dimensionally. The spine not only curves, but will eventually rotate also. A proper frame should be child size appropriate, and incorporate a series of devices and mechanisms that facilitate controlled traction and assist the surgeon with derotation and lateral pressure of the spine while a POP jacket is being applied. The frame is essential to this process because it assists the surgeon in obtaining gentle correction. A great example of this is how the child’s spine loosens up while on the frame during jacket application preparation. While the team is preparing to assist the surgeon the child is on the frame and you can clearly see the spine become straighter. By the time the surgeon is ready to apply the plaster, the spine has had time to loosen a little via traction, and derotation. This “loosening” of the curve(s) helps the surgeon tremendously in overall gentle correction on all three planes. These are critical components in the Early Treatment Method of addressing progressive infantile scoliosis.</span></span></div>
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<b><span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Over the Shoulder –vs- Under the Arm Jacket?</span></span></b></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">This depends on the child’s individual presentation of scoliosis. My understanding of this is that the over the shoulder type of jacket provides extra support to the spine and the jacket, itself. Over time, plaster jackets loosen up and if the jacket is an under arm style, the jacket will begin to ride up under the arms and is no longer supportive. To prevent this from happening, surgeons using the under arm jackets must apply them tighter around the chest cavity, and in some cases must tightly reinforce the top section of the jacket with an extra roll of plaster in effort to prevent the jacket from eventually riding up and loosing all support. </span></span></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">The over the shoulder type of jacket has shoulder straps, which help prevent the jacket from riding up. The surgeon doesn’t have to reinforce the jacket tighter around the chest or use extra plaster, because the shoulder straps assist in holding the jacket down through the life of the jacket. </span></span></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Children’s bones are soft, so less pressure around the chest cavity is best. There are many factors that contribute to chest wall deformities. The length of time your child wears the jacket, the location of the child’s curve(s), the proper application of the jacket, and the equipment used to apply the jacket should all be taken into account. A surgeon that has been trained to use the Early Treatment Method developed by Dr. Mehta will know what type of jacket is best for your child.</span></span> </div>
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<b><span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Why go to a trained Dr.?</span></span></b></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">If the treatment of progressive infantile scoliosis were non-specific there would not be the prevalence of cases nor the need for organizations like ISOP. Again, if progressive infantile scoliosis was so non-specific, any cast technician with basic skills could apply any kind of cast and get consistent results without detrimental side effects. We know, and must remember, that the early treatment of infantile scoliosis is very specific to the individual child. As Miss Mehta would say, “Treat the child, not the x-ray.” There are many individual factors which define each child’s own presentation of scoliosis. Dr. Mehta has devoted over 30 years of her medical career to the development and perfection of the Early Treatment Method. Her findings are not based on one child or even a handful of children. The Early Treatment Method is substantiated by over 136 cases, of differing scoliosis presentations, whose treatment was documented over several years. These cases highlight the consistent and lasting results gained through the Early Treatment Method.</span></span> </div>
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<b><span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">Conclusion</span></span></b></div>
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<span style="font-family: Palatino Linotype; font-size: small;"><span style="font-size: 12pt;">In the last few years I have been able to witness at least 25 POP jacket applications by Dr. Mehta. On each occasion I learn something new, and these experiences have been invaluable to me in understanding that there is a very specific formula to applying serial corrective plaster jackets early and properly to our young children. My goal in sharing what I have learned is to help you make the best decisions possible for your child. Early Treatment is still very new in the orthopaedic world and ALL of us familiar with it, are on a learning curve. Please take this into account when pursuing this option for your child. Children have a short window of rapid growth in which to benefit from Early Treatment. The best plan is to have the jacket applied properly, so the window of time for your child to benefit is not lost. </span></span> </div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com3tag:blogger.com,1999:blog-518955495405743582.post-66522823556831367292012-09-29T11:53:00.000-04:002012-09-29T11:53:16.257-04:00Duct Tape<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Just a quick post to all my readers who have children in casts, or who love duct tape crafts. I bought Olivia's candy corn duct tape from <a href="http://www.tapebrothers.com/Special-Duct-Tapes-s/19.htm" target="_blank">Tape Brothers</a>. This site is excellent for purchasing hard to find duct tapes. I was able to get reindeer tape for her next cast, and there are other designs I'll probably get too. You can also "like" their page on <a href="http://www.facebook.com/pages/tapebrotherscom/138953999469237" target="_blank">Facebook</a>. We have gathered a wonderful collection of tape so far. I like being able to personalize her cast along with waterproofing it. </div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com4tag:blogger.com,1999:blog-518955495405743582.post-78941404354609202152012-09-26T22:09:00.001-04:002012-09-26T22:09:35.432-04:00As Promised....<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Here are some pictures of Olivia in her new cast! Daddy had the day off from work today, so Olivia enjoyed waffles for breakfast and a fun day visiting her cousin and grandmother. Olivia's next casting is scheduled for Thanksgiving week. And without further ado...</div>
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Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com6tag:blogger.com,1999:blog-518955495405743582.post-89973041215119493692012-09-25T23:13:00.002-04:002012-09-25T23:21:47.626-04:00Cast Day! Cast 2<br />
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<i><span class="Apple-style-span" style="font-style: normal;">Greetings and a Reminder:</span></i></div>
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<i>I write this blog as we go through ET Mehta Casting with our daughter Olivia. The blog is intended to inform, possibly inspire, and raise awareness of Infantile Scoliosis and its treatment/cure. Please share our story. For more information please check out <a href="http://www.infantilescoliosis.org/" style="color: #661199; text-decoration: none;" target="_blank">http://www.infantilescoliosis.org/ </a></i></div>
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Today Olivia received her second corrective torso cast for her infantile scoliosis. She was amazing! I couldn't be more proud of her. Last night we had a super fun bath and plenty of squishy cuddle time. It's like a special treat we have to look forward to every two months. </div>
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We arrived at the hospital at 7:15 sharp for her 8:45 casting. We went straight to Day Surgery and within 15 minutes we were in our little holding tank. We met with the anesthesiology team and Dr. G, picked her cast color (orange), and we were ready to go. I mentioned my concerns about her IV and her belly button. They said they would put the IV in her hand, and add extra moleskin to her belly button area. Dr. G said that her skin looked amazing, especially for a child with such fair skin. He also confirmed that all x-rays will be in cast until the year point. This is done to minimize unnecessary x-raying, and he feels that she will need the year. He hopes to have her in a brace come the summer. Fingers crossed. Sure enough we were on our way in to the casting room at 8:45. I have to say that they are wonderful when it comes to scheduling! </div>
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We went into the casting room together so I could sit with her during sedation and we got to ride in via mobile bed. She was very brave letting them put the mask on her bear, on me, and then on her. Once it was really on her though, she was not very pleased. They asked me to sing to her and I couldn't get through "You Are My Sunshine" without breaking. I don't think that part will ever get easier. I know she's scared and there's nothing you can do about it. I just can't help but feel bad in that moment in time. I'm fine once I'm out of there. </div>
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Bri and I hung out in the waiting room and Dr. G came in 45 minutes later to tell us that she did great and that she's pretty straight in the cast. Fifteen minutes later we were with her in recovery. She was still out when we got there. Everyone was admiring her adorable Gymboree outfit I had laid out for her to wear. She woke up within ten minutes smoothly and without tears. She drank her apple juice, we dressed her and we were on our way. </div>
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We got home from Boston close to 1. Olivia slept from that time until about quarter of 5. When she got up we taped up her cast with her new candy corn tape. I didn't get a chance to take pictures of her new cast, but I promise to and I will post them tomorrow. We went out to dinner to celebrate, came home and played and she is now sleeping peacefully. I just can't get over how resilient she is. She did not need a single drop of pain medication nor did she show any complaint. Brian and I are truly blessed to have a daughter as amazing and as strong as her. New pics tomorrow!</div>
Laura Gustafsonhttp://www.blogger.com/profile/03262701210158987606noreply@blogger.com0